The chronic and progressive evolution of Inflammatory Bowel Diseases (IBD), with its prototypical fluctuating trend, creates a condition of psycho-social discomfort, impacting the quality of life in terms of personal, working, and interpersonal. In this article, we want to identify the nature and extent of the research evidence on the life experiences, the perceived engagement, the psychological, social care and welfare needs of people affected by IBD across the lifecycle. Following the approach set out by Arksey and O’Malley and the PRISMA extension for scoping reviews, we conducted a scoping review in March 2019 and closed the review with an update in October 2019. It was performed using electronic databases covering Health and Life Sciences, Social Sciences and Medical Sciences, such as PubMed, Medline, Embase, Scopus, Cochrane, Web of Science, PsycInfo. We identified 95 peer-reviewed articles published from 2009 to 2019, that allowed to detection the main needs in children (psychological, need to be accepted, physical activity, feeding, parent style, support, social needs), adolescents (to understand, physical and psychological needs, protection, relational, gratitude, respect, and engagement) and adults (information, medical, psychological, social, work-related, practical, future-related, engagement). Although the literature confirms that the majority of the IBD units have planned provision for the different types of transitions, the quality and appropriateness of these services have not been assessed or audited for all the kinds of challenges across the life cycle. The literature shows the relevance of organizing a flexible, personalized health care process across all the critical phases of the life cycle, providing adequate benchmarks for comparison in a multidisciplinary perspective and ensuring continuity between hospital and territory.

中文翻译：

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IBD 在整个生命周期中感知参与和护理需求的演变：范围审查

炎症性肠病 (IBD) 的慢性和渐进性演变及其典型的波动趋势会造成心理社会不适，影响个人、工作和人际关系方面的生活质量。在本文中，我们希望确定有关受 IBD 影响的人在整个生命周期中的生活经历、感知参与度、心理、社会关怀和福利需求的研究证据的性质和范围。遵循 Arksey 和 O'Malley 提出的方法以及 PRISMA 范围界定审查的扩展，我们于 2019 年 3 月进行了范围界定审查，并于 2019 年 10 月更新了审查。它是使用涵盖健康和生命科学的电子数据库进行的，社会科学和医学科学，例如 PubMed、Medline、Embase、Scopus、Cochrane、Web of Science，心理信息。我们确定了 2009 年至 2019 年发表的 95 篇同行评审文章，这些文章允许检测儿童的主要需求（心理、需要被接受、身体活动、喂养、父母风格、支持、社交需求）、青少年（理解、身体和心理需求、保护、关系、感恩、尊重和参与）和成人（信息、医疗、心理、社会、工作相关、实际、未来相关、参与）。尽管文献证实大多数 IBD 单位已计划为不同类型的过渡提供服务，但尚未针对生命周期中的所有挑战对这些服务的质量和适当性进行评估或审核。文献显示了组织灵活、