The purpose of this study is to understand the sexual experiences and perspectives of adolescents and young adults (AYA) with intellectual or developmental disabilities, how they are receiving sexual education, and how sexual education can be tailored to their needs. This qualitative study utilized semi-structured focus groups and interviews with eight AYA with intellectual or developmental disabilities from January 14 to May 7, 2019. Data were analyzed using a constant comparative approach. Participants reported a diverse range of sexual experiences and an interest in marriage and parenting in the future. Two themes emerged for how AYA are learning about sexual health information: through formal (school, doctors’ visits, or from caregivers) and informal education (peers, siblings, self-exploration, or Pop Culture). Sexual education can be tailored to this population by addressing educational gaps (pregnancy, contraception, sexually transmitted infections, intimacy, and sexual activity) and by implementing specific participant recommendations (proactive, inclusive education with real-life examples). With a growing emphasis on disability rights to sexual education among individuals with intellectual or developmental disabilities, it is vital to understand AYA’s experiences, perspectives, and current understanding of sexual health information so that we can design a program specifically tailored to meet their unique needs.

本研究的目的是了解有智力或发育障碍的青少年和青年 (AYA) 的性经历和观点，他们如何接受性教育，以及如何根据他们的需求量身定制性教育。这项定性研究利用半结构化焦点小组，并于 2019 年 1 月 14 日至 5 月 7 日对八名智力或发育障碍的 AYA 进行了访谈。使用持续比较方法分析数据。参与者报告了各种各样的性经历以及对未来婚姻和育儿的兴趣。关于 AYA 如何了解性健康信息，出现了两个主题：通过正式（学校、医生就诊或从护理人员那里）和非正式教育（同龄人、兄弟姐妹、自我探索或流行文化）。可以通过解决教育差距（怀孕、避孕、性传播感染、亲密关系和性活动）和实施具体的参与者建议（具有现实生活实例的主动、包容性教育）来为这一人群量身定制性教育。随着智力或发育障碍者对性教育的残疾权利越来越重视，了解 AYA 的经验、观点和当前对性健康信息的理解至关重要，以便我们可以设计一个专门为满足他们独特需求而量身定制的计划。包含真实案例的包容性教育）。随着智力或发育障碍者对性教育的残疾权利越来越重视，了解 AYA 的经验、观点和当前对性健康信息的理解至关重要，以便我们可以设计一个专门为满足他们独特需求而量身定制的计划。包含真实案例的包容性教育）。随着智力或发育障碍者对性教育的残疾权利越来越重视，了解 AYA 的经验、观点和当前对性健康信息的理解至关重要，以便我们可以设计一个专门为满足他们独特需求而量身定制的计划。