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Barriers to Dissemination of Local Health Data Faced by US State Agencies: Survey Study of Behavioral Risk Factor Surveillance System Coordinators
Journal of Medical Internet Research ( IF 7.4 ) Pub Date : 2021-07-13 , DOI: 10.2196/16750
Manik Ahuja 1 , Robert Aseltine 2
Affiliation  

Background: Advances in information technology have paved the way to facilitate accessibility to population-level health data through web-based data query systems (WDQSs). Despite these advances in technology, US state agencies face many challenges related to the dissemination of their local health data. It is essential for the public to have access to high-quality data that are easy to interpret, reliable, and trusted. These challenges have been at the forefront throughout the COVID-19 pandemic. Objective: The purpose of this study is to identify the most significant challenges faced by state agencies, from the perspective of the Behavioral Risk Factor Surveillance System (BRFSS) coordinator from each state, and to assess if the coordinators from states with a WDQS perceive these challenges differently. Methods: We surveyed BRFSS coordinators (N=43) across all 50 US states and the District of Columbia. We surveyed the participants about contextual factors and asked them to rate system aspects and challenges they faced with their health data system on a Likert scale. We used two-sample t tests to compare the means of the ratings by participants from states with and without a WDQS. Results: Overall, 41/43 states (95%) make health data available over the internet, while 65% (28/43) employ a WDQS. States with a WDQS reported greater challenges (P=.01) related to the cost of hardware and software (mean score 3.44/4, 95% CI 3.09-3.78) than states without a WDQS (mean score 2.63/4, 95% CI 2.25-3.00). The system aspect of standardization of vocabulary scored more favorably (P=.01) in states with a WDQS (mean score 3.32/5, 95% CI 2.94-3.69) than in states without a WDQS (mean score 2.85/5, 95% CI 2.47-3.22). Conclusions: Securing of adequate resources and commitment to standardization are vital in the dissemination of local-level health data. Factors such as receiving data in a timely manner, privacy, and political opposition are less significant barriers than anticipated.

This is the abstract only. Read the full article on the JMIR site. JMIR is the leading open access journal for eHealth and healthcare in the Internet age.


中文翻译:

美国州机构面临的传播当地健康数据的障碍:行为风险因素监测系统协调员的调查研究

背景:信息技术的进步为通过基于网络的数据查询系统 (WDQS) 促进获取人口级健康数据铺平了道路。尽管技术取得了这些进步,但美国各州机构在传播当地健康数据方面仍面临许多挑战。公众必须能够访问易于解释、可靠和可信的高质量数据。在整个 COVID-19 大流行期间,这些挑战一直处于最前沿。目标:本研究的目的是从每个州的行为风险因素监测系统 (BRFSS) 协调员的角度确定州机构面临的最重大挑战,并评估来自拥有 WDQS 的州的协调员是否意识到这些挑战不同。方法:我们调查了美国所有 50 个州和哥伦比亚特区的 BRFSS 协调员 (N=43)。我们就环境因素对参与者进行了调查,并要求他们以李克特量表对系统方面和他们在健康数据系统中面临的挑战进行评分。我们使用双样本 t 检验来比较来自有和没有 WDQS 的州的参与者的评分均值。结果:总体而言,41/43 个州 (95%) 通过互联网提供健康数据,而 65% (28/43) 使用 WDQS。拥有 WDQS 的州报告的与硬件和软件成本相关的挑战(P=.01)(平均得分 3.44/4,95% CI 3.09-3.78)比没有 WDQS 的州(平均得分 2.63/4,95% CI)更大2.25-3.00)。在 WDQS 的州,词汇标准化的系统方面得分更高(P=.01)(平均得分 3.32/5,95% CI 2.94-3。69)比没有 WDQS 的州(平均得分 2.85/5,95% CI 2.47-3.22)。结论:确保足够的资源和对标准化的承诺对于传播地方层面的健康数据至关重要。及时接收数据、隐私和政治反对等因素都没有预期的那么重要。

这只是摘要。阅读 JMIR 网站上的完整文章。JMIR 是互联网时代电子健康和医疗保健领域领先的开放获取期刊。
更新日期:2021-07-13
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