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“It’s harder for the likes of us”: racially minoritised stem cell donation as ethico-racial imperative
BioSocieties ( IF 1.615 ) Pub Date : 2021-07-13 , DOI: 10.1057/s41292-021-00241-9
Ros Williams 1
Affiliation  

How best are we to understand appeals to participate in a biomedical project that are based both on invoking shared racial identity, and on framing engagement as the clear moral course of action? Stem cell donor recruitment, which often focuses on engaging racially minoritised communities, provides useful insight into this question. This article proposes that it is not an essential mutual racial identity between the person asking and the person asked at play. Rather, it is the creative ‘doing’ of relatedness between people at the scale of race as well as family that coalesces into powerful appeals to participate. Through analysis of ethnographic, documentary and social media data, the paper argues that this work relies at least partly on framing donation as a duty of being part of a racialised community, which I describe here as an ethico-racial imperative, in which both race and responsibility become intertwined to compel participation in the biomedical project of donor registration.



中文翻译:

“这对我们这样的人来说更难”:将干细胞捐赠种族少数化是伦理种族的必要条件

我们如何最好地理解参与生物医学项目的呼吁,该项目既基于调用共享的种族身份,又基于将参与视为明确的道德行动方针?干细胞捐赠者招募通常侧重于参与少数族裔社区,为这个问题提供了有用的见解。本文提出,提问者和游戏提问者之间并非本质上的相互种族身份。更确切地说,是在种族和家庭规模上的人们之间创造性的“行为”结合成强大的参与诉求。通过对民族志、纪录片和社交媒体数据的分析,该论文认为,这项工作至少部分依赖于将捐赠视为成为种族化社区一部分的义务,我在此将其描述为伦理-种族势在必行,其中种族和责任交织在一起,迫使人们参与捐赠者登记的生物医学项目。

更新日期:2021-07-13
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