Background

Chronic pain is common among people living with cystic fibrosis (CF) and associated with worse clinical outcomes. Despite this, little is known about how pain is managed and how opioids are used to treat pain. The purpose of this convergent mixed methods study was to examine self-reported satisfaction and effectiveness of pain management strategies among a sample of adults with CF who are prescribed opioids.

Methods

We developed an online survey querying 4 domains - demographics, pain characteristics, pain communication, and management strategies. This was distributed nationally to adults with CF (n=48) via various online platforms. We obtained quantitative and qualitative responses regarding satisfaction and effectiveness of pain management. Emerged themes from qualitative data were compared with responses from quantitative survey domains.

Results

Participants reported high levels of satisfaction and effectiveness with their opioid pain management plans. However, qualitative themes emerged regarding fears of addiction, experiences of feeling stigmatized by the healthcare system and ineffectiveness and inefficiency of alternative therapies for adequate pain relief.

Conclusions

Adults with CF reported opioids as an important component of their current pain management plans despite risks associated with opioid use. CF-specific pain management guideline development is warranted as is further research exploring pain development.

中文翻译：

---

患有囊性纤维化的成年人对阿片类药物疼痛管理的满意度和有效性：一项混合方法研究

背景

慢性疼痛在囊性纤维化 (CF) 患者中很常见，并且与较差的临床结果相关。尽管如此，人们对如何控制疼痛以及如何使用阿片类药物治疗疼痛知之甚少。这项融合混合方法研究的目的是检查在处方阿片类药物的 CF 成人样本中自我报告的疼痛管理策略的满意度和有效性。

方法

我们开发了一项在线调查，查询 4 ​​个领域——人口统计、疼痛特征、疼痛沟通和管理策略。这是通过各种在线平台在全国范围内分发给患有 CF 的成年人 (n=48)。我们获得了关于疼痛管理的满意度和有效性的定量和定性反应。将定性数据中出现的主题与定量调查领域的响应进行了比较。

结果

参与者报告了他们对阿片类药物疼痛管理计划的高度满意度和有效性。然而，出现了关于对成瘾的恐惧、被医疗保健系统羞辱的经历以及替代疗法对充分缓解疼痛的无效性和低效性的定性主题。

结论

尽管使用阿片类药物存在风险，但患有 CF 的成年人称阿片类药物是他们当前疼痛管理计划的重要组成部分。CF 特定疼痛管理指南的制定是必要的，因为探索疼痛发展的进一步研究也是如此。