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Biological, Behavioral, and Ethical Considerations of Prader-Willi Syndrome: A Primer for Behavior Analysts
Behavior Analysis in Practice Pub Date : 2021-07-08 , DOI: 10.1007/s40617-021-00618-z
Danielle Kennedy 1 , Halle Marten 1 , Clare O'Sullivan 1 , Rocco Catrone 1, 2
Affiliation  

Prader-Willi syndrome (PWS) is a rare genetic disorder typically characterized by hyperphagia, hypotonia, intellectual disabilities, insistence on routines, and obsession and compulsion related to food. Although current medical interventions primarily include growth hormones to address the biological symptoms of the individual, behavioral therapy is an alternative option for skill acquisition and decreasing problem behaviors. There is a growing need for applied behavior analysis (ABA) research on targeting problem behaviors and teaching requisite skills to individuals with this syndrome. This article reviews the current literature on PWS, highlights treatments and their limitations, suggests how ABA providers can provide ethical services, and proposes future research needs with this syndrome.



中文翻译:

Prader-Willi 综合征的生物学、行为和伦理考虑:行为分析师入门

Prader-Willi 综合征 (PWS) 是一种罕见的遗传性疾病,其典型特征是食欲过盛、肌张力减退、智力障碍、坚持常规以及与食物相关的强迫症。尽管当前的医疗干预主要包括生长激素来解决个体的生物学症状,但行为疗法是获得技能和减少问题行为的替代选择。越来越需要应用行为分析 (ABA) 研究来针对问题行为和向患有这种综合征的个体教授必要的技能。本文回顾了当前有关 PWS 的文献,强调了治疗方法及其局限性,提出了 ABA 提供者如何提供道德服务,并提出了该综合征的未来研究需求。

更新日期:2021-07-08
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