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Predicting Quality of Life in Caregivers of Children with Cancer Within One Year Post-Diagnosis
Journal of Child and Family Studies ( IF 2.784 ) Pub Date : 2021-07-06 , DOI: 10.1007/s10826-021-02008-z
Maru Barrera 1 , Aden Solomon 1 , Kelly Hancock 1 , Leandra Desjardins 2 , Joanna Chung 3
Affiliation  

Pediatric cancer diagnosis and treatment can impact the psychological adjustment and quality of life (QOL) of caregivers. We examined: (a) the relationship between caregiver QOL and family psychosocial risk, mental health symptoms and distress concurrently, shortly after diagnosis, and six months later; and (b) which of these factors at near diagnosis can predict caregiver QOL six months later, controlling for demographic and child clinical factors. Participants were 122 caregivers in two Canadian sites. Each completed the Caregiver Quality of Life Cancer Scale, the Psychosocial Assessment Tool (PAT), the Distress Thermometer (DT), and the Hospital Anxiety and Depression Scale (HADS) near diagnosis (T1) and six months later (T2). Clinical and demographic information were also collected. Clinical and demographic factors were not associated with QOL at either T1 or T2. Concurrent analyses (within T1 and T2) indicated the PAT, DT, and anxiety symptoms as significant factors contributing to caregiver QOL. Longitudinally, only T1PAT and depression symptoms significantly predicted caregiver QOL at T2. Family psychosocial risk and caregiver depression symptoms near diagnosis predict caregiver QOL six months later. These results have important implications for supporting caregivers of children with cancer.



中文翻译:

预测癌症儿童在诊断后一年内照顾者的生活质量

小儿癌症的诊断和治疗会影响护理人员的心理调整和生活质量 (QOL)。我们检查了:(a)在诊断后不久和六个月后,看护人 QOL 与家庭心理社会风险、心理健康症状和痛苦之间的关系;(b) 在控制人口统计学和儿童临床因素的情况下,哪些因素在接近诊断时可以预测六个月后看护者的 QOL。参与者是加拿大两个地点的 122 名护理人员。每个人都在接近诊断 (T1) 和六个月后 (T2) 完成了照顾者生活质量癌症量表、心理社会评估工具 (PAT)、痛苦温度计 (DT) 和医院焦虑和抑郁量表 (HADS)。还收集了临床和人口统计信息。临床和人口统计学因素与 T1 或 T2 的 QOL 无关。同时分析(在 T1 和 T2 内)表明 PAT、DT 和焦虑症状是影响看护者 QOL 的重要因素。纵向来看,只有 T1PAT 和抑郁症状显着预测了 T2 时的看护者 QOL。接近诊断的家庭社会心理风险和看护者抑郁症状可预测六个月后看护者的 QOL。这些结果对支持癌症儿童的照顾者具有重要意义。接近诊断的家庭心理社会风险和看护者抑郁症状可预测六个月后看护者的 QOL。这些结果对支持癌症儿童的照顾者具有重要意义。接近诊断的家庭心理社会风险和看护者抑郁症状可预测六个月后看护者的 QOL。这些结果对支持癌症儿童的照顾者具有重要意义。

更新日期:2021-07-06
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