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Family imaginaries in the disclosure of a blood-borne virus
Sociology of Health & Illness ( IF 2.957 ) Pub Date : 2021-06-23 , DOI: 10.1111/1467-9566.13316
Anthony K J Smith 1 , Asha Persson 1 , Kerryn Drysdale 1, 2 , Joanne Bryant 1 , Kylie Valentine 3 , Jack Wallace 4 , Myra Hamilton 5 , Rebecca M Gray 1 , Christy E Newman 1
Affiliation  

Contemporary sociological work has emphasised that family is not static, but actively shaped by ideas of who and what makes family. Disclosure of an illness, including diagnosis of stigmatised infections such as HIV, hepatitis B virus and hepatitis C virus, can change the dynamics of family relationships. This paper draws on 61 qualitative semi-structured interviews conducted between 2017 and 2019 with people in Australia with one or more of these blood-borne viruses (BBVs) and their family members, to understand the experiences of serodiscordant (mixed viral status) families. Through a thematic analysis, we explore the family imaginaries that participants evoked when describing their disclosure practices in relation to (self-defined) family members, revealing how some participants disclosed in ways that enabled them to shape their family, to maintain boundaries between self and family or to protect family from distress. Participants' accounts of disclosure to family revealed imaginaries of family as a precious web of connections to be nurtured or protected, but also as sites of ambivalent belonging and complex history. We conclude that BBV disclosure practices within families reveal important ideas about families that are imagined in response to the threat of loss, change and stigma.

中文翻译:

血源性病毒披露中的家庭想象

当代社会学工作强调家庭不是静态的,而是由谁和什么构成家庭的观念积极塑造的。疾病的披露,包括对艾滋病毒、乙型肝炎病毒和丙型肝炎病毒等污名化感染的诊断,可以改变家庭关系的动态。本文借鉴了 2017 年至 2019 年对澳大利亚患有一种或多种血源性病毒 (BBV) 的人及其家人进行的 61 次定性半结构化访谈,以了解血清不一致(混合病毒状态)家庭的经历。通过主题分析,我们探索了参与者在描述与(自定义)家庭成员相关的披露实践时所唤起的家庭想象,揭示了一些参与者如何以能够塑造家庭的方式进行披露,保持自我和家人之间的界限或保护家人免受痛苦。参与者对家庭披露的描述揭示了家庭的想象是一个需要培养或保护的宝贵联系网络,但也是矛盾归属和复杂历史的场所。我们得出的结论是,家庭内部的 BBV 披露实践揭示了有关家庭的重要想法,这些想法是为应对失去、变化和耻辱的威胁而想象的。
更新日期:2021-08-11
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