Abstract

The goal of this study was to evaluate the efficacy of hand camp by investigating camp participation and outcomes on self-esteem, physical function, activity participation, and peer relationships. Forty patients with a congenital hand difference seen in hand clinic between the ages of 10 and 13 were eligible to attend hand camp. Participation involved completion of questionnaires at 3-time points: before camp (Pre-Camp Questionnaires), immediately following camp (Immediate Follow-Up Questionnaires) and 6-months after camp (Final Follow-Up Questionnaires). The questionnaires administered included: Demographic Form, Patient Reported Outcomes Measurement Information System (PROMIS), Rosenberg Self-Esteem Scale (RSES), and Camp Expectation Questionnaire. Thirty-six patients were included (22 females, 14 males), average age of 11.17 years. Diagnoses included: central deficiency, transverse deficiency, radial longitudinal deficiency, ulnar longitudinal deficiency, and overgrowth conditions. PROMIS Upper Extremity Function significantly improved from pre-camp to immediate follow-up (46.24 to 48.95; p = 0.016), as well as at pre-camp and final follow-up (46.24 to 49.44; p = 0.008). PROMIS Peer Relation scores significantly improved from pre-camp to immediate follow-up (52.26 to 57.91; p = 0.002). RSES results indicated significant improvements in self-esteem between pre-camp and immediate follow-up (23.92 to 26.81; p < 0.001), and between pre-camp and final follow-up (23.92 to 25.72; p < 0.001). Peer relationships, upper extremity function, and self-esteem improved immediately following hand camp. Upper extremity function and self-esteem scores continued to improve significantly throughout the 6-month follow-up period. The study authors believe that research related to therapeutic camping experiences is integral when identifying best-practice interventions to increase quality of life outcomes for children with congenital hand differences.

摘要

本研究的目的是通过调查营地参与和自尊、身体机能、活动参与和同伴关系的结果来评估手部营地的功效。在手部诊所就诊的 40 名年龄在 10 至 13 岁之间的先天性手部差异患者有资格参加手部训练营。参与涉及在 3 个时间点完成问卷：营前（营前问卷）、营后立即（立即跟进问卷）和营后 6 个月（最终跟进问卷）。管理的问卷包括：人口统计表、患者报告结果测量信息系统 (PROMIS)、罗森伯格自尊量表 (RSES) 和营地期望问卷。纳入患者36例（女22例，男14例），平均年龄11.17岁。诊断包括：中央缺陷、横向缺陷、径向纵向缺陷、尺骨纵向缺陷和过度生长状况。PROMIS 上肢功能从训练前到立即随访（46.24 至 48.95；p = 0.016）以及训练前和最终随访（46.24 至 49.44；p = 0.008）均有显着改善。PROMIS Peer Relation 分数从训练前到立即随访都有显着提高（52.26 到 57.91；p = 0.002）。RSES 结果表明，训练营前和立即随访（23.92 至 26.81；p < 0.001）以及训练营前和最终随访（23.92 至 25.72；p < 0.001）之间的自尊有显着改善。手部训练后，同伴关系、上肢功能和自尊立即得到改善。在整个 6 个月的随访期间，上肢功能和自尊评分持续显着改善。该研究的作者认为，在确定最佳实践干预措施以提高先天性手部差异儿童的生活质量时，与治疗性露营体验相关的研究是不可或缺的。