Abstract

Performing end-of-life care can be a catalyst for developing a capacity called death literacy. This study aimed to develop a comprehensive and useable measure of death literacy that has the potential to assess interventions with individuals, communities, and societies. Using a mixed methods approach, a Death Literacy Index was developed from personal narratives and input from practitioners and experts. Refined on a sample of 1330 Australians using exploratory and confirmatory factor analysis and structural equation modeling, a 29-item Death Literacy Index was found to be reliable and demonstrated construct validity. Further studies are needed to test predictive validity.

摘要

进行临终关怀可以成为培养被称为死亡素养的能力的催化剂。本研究旨在开发一种全面且可用的死亡素养衡量标准，该衡量标准有可能评估对个人、社区和社会的干预措施。使用混合方法，死亡素养指数是根据个人叙述和从业者和专家的意见开发的。使用探索性和验证性因子分析和结构方程模型对 1330 名澳大利亚人的样本进​​行了改进，发现 29 项死亡识字指数是可靠的，并证明了结构有效性。需要进一步的研究来测试预测有效性。