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User involvement in adolescents’ mental healthcare: a systematic review
European Child & Adolescent Psychiatry ( IF 6.4 ) Pub Date : 2021-06-05 , DOI: 10.1007/s00787-021-01818-2
Petter Viksveen 1, 2 , Stig Erlend Bjønness 1, 3, 4 , Nicole Elizabeth Cardenas 1, 5 , Julia Rose Game 1, 6 , Siv Hilde Berg 1, 2 , Anita Salamonsen 7 , Marianne Storm 4 , Karina Aase 1, 2
Affiliation  

More than one out of ten adolescents suffer from mental illness at any given time. Still, there is limited knowledge about their involvement in mental healthcare. Adolescents have the right to be involved in decisions affecting their healthcare, but limited research focuses on their engagement and decision-making. Therefore, this systematic review aims to explore the existing experiences with, the effectiveness of, and safety issues associated with user involvement for adolescents’ mental healthcare at the individual and organizational level. A systematic literature review on user involvement in adolescents’ mental healthcare was carried out. A protocol pre-determined the eligibility criteria and search strategies, and established guidelines were used for data extraction, critical appraisal, and reporting of results. Quantitative studies were analysed individually due to heterogeneity of the studies, while qualitative studies were analysed using thematic synthesis. A total of 31 studies were included in the review. The experiences with user involvement were reported in 24 studies with three themes at the individual level: unilateral clinician control versus collaborative relationship, capacity and support for active involvement, the right to be involved; and two themes at the organizational level: involvement outcomes relevant to adolescents’ needs, conditions for optimal involvement. The effectiveness of user involvement was reported in seven studies documenting fragmented evidence related to different support structures to facilitate adolescents’ involvement. The safety associated with user involvement was not reported in any studies, yet a few examples related to potential risks associated with involvement of adolescents in decision-making and as consultants were mentioned.



中文翻译:

用户参与青少年心理保健:系统评价

在任何特定时间,超过十分之一的青少年患有精神疾病。尽管如此,关于他们参与精神保健的知识仍然有限。青少年有权参与影响其医疗保健的决策,但有限的研究关注他们的参与和决策。因此,本系统评价旨在探讨用户在个人和组织层面参与青少年心理保健的现有经验、有效性和相关安全问题。对用户参与青少年心理保健进行了系统的文献综述。协议预先确定了资格标准和搜索策略,并使用既定指南进行数据提取、严格评估和结果报告。由于研究的异质性,定量研究被单独分析,而定性研究则使用主题综合进行分析。该评价共纳入 31 项研究。24 项研究报告了用户参与的经验,这些研究在个人层面涉及三个主题:单方面临床医生控制与协作关系、积极参与的能力和支持、参与的权利;组织层面的两个主题:与青少年需求相关的参与结果、最佳参与条件。七项研究报告了用户参与的有效性,这些研究记录了与促进青少年参与的不同支持结构相关的零散证据。任何研究均未报告与用户参与相关的安全性,

更新日期:2021-06-05
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