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“Concurrent Ropes and Ladders”: Mapping and Conceptualizing the Emotional Loss Experience of Parents Following Pediatric Acquired Brain Injury
Qualitative Health Research ( IF 4.233 ) Pub Date : 2021-05-24 , DOI: 10.1177/10497323211012384
Einat Yehene 1, 2 , Pnina Steinberg 2 , Maya Gerner 2 , Amichai Brezner 2 , Jana Landa 2, 3
Affiliation  

This grounded theory study aims to map, conceptualize, and theorize the emotional loss experienced by parents following their child’s pediatric acquired brain injury (pABI). Data were obtained from 47 semi-structured interviews conducted with parents (72% mothers) at least 1 year following pABI. The study’s theory of “concurrent ropes and ladders” emerged from a process of initial in vivo coding followed by focused and thematic coding. Codes were consolidated into five thematic categories capturing parents’ emotional continuous loss experience: (a) comparing life before and after, (b) struggling to construct new realities, (c) recognizing instability and permanency, (d) adjusting and readjusting, and (e) grieving as an emotional shadow. These categories are at work simultaneously in parents’ accounts, thus supporting a model of dynamic concurrency within and across their lived experiences. Recommendations for practitioners were derived from the theory to support parents’ emotional coping with living loss throughout the chronic stage.



中文翻译:

“并发绳梯”:绘制和概念化儿童获得性脑损伤后父母的情绪丧失体验

这项扎根理论研究旨在绘制、概念化和理论化父母在儿童获得性脑损伤 (pABI) 后所经历的情绪损失。数据来自于 pABI 后至少 1 年与父母(72% 的母亲)进行的 47 次半结构化访谈。该研究的“绳索并举”理论源于最初的体内编码,然后是重点和主题编码的过程。代码被合并为五个主题类别,捕捉父母的情绪持续丧失体验:(a) 比较之前和之后的生活,(b) 努力构建新的现实,(c) 识别不稳定和永久性,(d) 调整和重新调整,以及 ( e) 作为情感阴影的悲伤。这些类别同时在父母的账户中起作用,从而支持在他们的生活经历中和跨生活经历的动态并发模型。对从业者的建议源自该理论,以支持父母在整个慢性阶段对生活丧失的情绪应对。

更新日期:2021-05-24
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