There is no consensus on how best to measure responses to interventions among children and adults with cystic fibrosis (CF). We have systematically reviewed and summarised the characteristics and measurement properties of tests and tools that have been used to capture outcomes in studies among people with CF, including their reliability, validity and responsiveness. This review is intended to guide researchers when selecting tests or tools for measuring treatment effects in CF trials. A consensus set of these tests and tools could improve consistency in how outcomes are captured and thereby facilitate comparisons and synthesis of evidence across studies.

中文翻译：

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囊性纤维化研究中使用的测试和工具的测量特性：系统评价

关于如何最好地衡量囊性纤维化 (CF) 儿童和成人对干预措施的反应尚未达成共识。我们系统地回顾和总结了用于捕获 CF 患者研究结果的测试和工具的特征和测量特性，包括其可靠性、有效性和响应性。本综述旨在指导研究人员在 CF 试验中选择测量治疗效果的测试或工具。这些测试和工具的共识集可以提高捕获结果的一致性，从而促进跨研究证据的比较和综合。