To clarify the influence of coronavirus disease-19 (COVID-19) on the care of muscular dystrophy patients, we performed a questionnaire survey that was posted on the internet on May 11, 2020. By the end of July 2020, 542 responses had been collected. Approximately 30% of patients postponed regular consultations, and one-quarter of patients who received consultation more than once a month used telephone consultations. Two of 84 patients with Duchenne muscular dystrophy had reduced their steroid doses. A shortage of ventilator accessories and infection protection equipment occurred following the onset of COVID-19, and this shortage had a serious impact on medical care and infection prevention measures. Reductions in rehabilitation and other services, and avoidance of outings, led to a decrease in exercise and an increase in caregiver burden. Inpatients were restricted from going out and visiting family members. More than 20% of patients reported physical or mental complaints; however, few required treatment. COVID-19 has seriously affected the activities and quality of life of patients with muscular dystrophy. We will continue this survey and analyze the longitudinal changes.

为阐明冠状病毒病 19 (COVID-19) 对肌营养不良患者护理的影响，我们于 2020 年 5 月 11 日在互联网上发布了一项问卷调查。截至 2020 年 7 月底，已收到 542 份回复集。大约 30% 的患者推迟了定期咨询，而每月接受咨询超过一次的患者中有四分之一使用电话咨询。84 名杜氏肌营养不良症患者中有两名减少了类固醇剂量。COVID-19 出现后呼吸机配件和感染防护设备出现短缺，这种短缺对医疗保健和感染预防措施产生了严重影响。康复和其他服务的减少，以及避免外出，导致运动量减少和看护者负担增加。住院病人被限制外出和探望家人。超过 20% 的患者报告身体或精神上的不适；但是，很少需要治疗。COVID-19 严重影响了肌营养不良症患者的活动和生活质量。我们将继续这项调查并分析纵向变化。