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The impact of anencephaly on parents: A mixed-methods study
Death Studies ( IF 4.340 ) Pub Date : 2021-04-17 , DOI: 10.1080/07481187.2021.1909669
Shandeigh N Berry 1 , Billie Severtsen 2 , Andra Davis 2 , Lonnie Nelson 2 , Marianne H Hutti 3 , Gail Oneal 2
Affiliation  

Abstract

This study used a convergent parallel mixed-method design to explore the impact of an anencephalic pregnancy on parents. Twenty women and four men between 18–59 years old participated. Interview transcripts were analyzed using interpretive phenomenology and synthesized with Perinatal Grief Intensity Scale scores using a Pearson’s correlation. Overall, 75% of parents scored intense grief. Qualitative patterns included overwhelming trauma, patient-centeredness as critical, stigmatizing perinatal loss, embracing personhood, and reframing reality. Control over care was associated with decreased grief (p =.019). Health care professionals are ideally positioned to reduce the risk of intense grief in parents experiencing an anencephalic pregnancy.



中文翻译:

无脑畸形对父母的影响:一项混合方法研究

摘要

本研究采用收敛平行混合方法设计来探讨无脑妊娠对父母的影响。20 名女性和 4 名 18 至 59 岁的男性参加。访谈记录使用解释现象学进行分析,并使用 Pearson 相关性与围产期悲伤强度量表评分合成。总体而言,75% 的父母感到非常悲痛。定性模式包括压倒性的创伤以患者为中心的批判、对围产期丧失的污名化拥抱人格重新定义现实。对护理的控制与减少悲伤有关(p=.019)。医疗保健专业人员处于理想的位置,可以降低经历无脑妊娠的父母发生强烈悲伤的风险。

更新日期:2021-04-17
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