Abstract

Governments are obligated to safeguard social inclusion for disabled people through user-led personal assistance (PA) under Article 19 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). This scoping review was carried out to map and explore current knowledge on how governments internationally have managed PA schemes in response to the UNCRPD. The review examined 99 documents, and categorised the literature into the following themes; legislation, funding, model of service provision, governance and regulation, and the COVID-19 pandemic response. We include recommendations to co-design legislation and quality improvement policies to ensure that PA schemes are underpinned by a social model of disability mindset. Further research needs to be undertaken to guarantee that policymakers include the voice of PA users in the management of PA schemes.

• Points of interest

• This article looked at 99 documents to find out how governments are managing personal assistance (PA). It found out that governments can often decide to spend less money on a PA scheme rather than protect our rights.

• To overcome this problem the documents recommended that legislation for PA schemes must be designed with disabled people. Governments must redirect their money from institutional services to community-based services. Eligibility criteria to control access and the costs of PA should be removed.

• This paper suggests that we need to have the voice of the PA user to direct the design and delivery of PA schemes.

Supplemental data for this article is available online at https://doi.org/10.1080/09687599.2021.1877114

摘要

根据《联合国残疾人权利公约》（UNCRPD）第 19 条，政府有义务通过用户主导的个人援助（PA）来保障残疾人的社会包容。进行范围审查是为了绘制和探索有关国际政府如何管理 PA 计划以响应 UNCRPD 的当前知识。审查审查了 99 篇文献，并将文献分为以下主题；立法、资金、服务提供模式、治理和监管以及 COVID-19 大流行应对措施。我们包括共同设计立法和质量改进政策的建议，以确保 PA 计划以残疾心态的社会模式为基础。

• 兴趣点

• 本文查看了 99 份文件，以了解政府如何管理个人援助 (PA)。它发现，政府通常可以决定在 PA 计划上花费更少的钱，而不是保护我们的权利。

• 为了克服这个问题，文件建议PA计划的立法必须针对残疾人设计。政府必须将资金从机构服务转向以社区为基础的服务。应删除控制访问和 PA 成本的资格标准。

• 本文建议我们需要有 PA 用户的声音来指导 PA 方案的设计和交付。

本文的补充数据可在线获取 https://doi.org/10.1080/09687599.2021.1877114