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Parent Caregiving Experiences and Posttraumatic Growth Following Pediatric Hematopoietic Stem Cell Transplant
Journal of Pediatric Hematology/Oncology Nursing ( IF 1.7 ) Pub Date : 2021-03-22 , DOI: 10.1177/1043454221992306
Nicole B Beckmann 1, 2 , Mary S Dietrich 1 , Mary C Hooke 3 , Mary J Gilmer 1 , Terrah F Akard 1
Affiliation  

Background: Parents of children recovering from hematopoietic stem cell transplant (HSCT) experience significant distress due to unpredictable and potentially life-threatening complications. Distress is heightened by intensive caregiving parents provide the child during the first 100 days after HSCT. Management of distress and adaptation to caregiving responsibilities may be enhanced if parents find benefit in their experiences through posttraumatic growth (PTG), yet little is known about how parents’ experiences after HSCT foster PTG. This study aimed to explore how parents experience caregiving and PTG 100 days after children’s HSCT. Methods: Thirty-one parents completed semi-structured interviews ∼100 days after children received HSCT. Results: Four major themes emerged from the data to describe parent experiences after HSCT: (1) psychosocial and healthcare contextual factors; (2) cognitive, affective, and social support reactions to HSCT; (3) problem-based, emotion-based, and cognitive coping strategies; and (4) PTG. Discussion: Results increase the understanding of how parents’ experiences and caregiving responsibilities contribute to PTG. These findings may guide future research to understand how these experiences influence PTG. Nurses are integral to the parents’ experiences. Future work should focus on nursing interventions that enhance positive reinterpretation of parents’ experiences after their children’s HSCT.



中文翻译:

小儿造血干细胞移植后的父母照顾经历和创伤后成长

背景:从造血干细胞移植 (HSCT) 中康复的儿童的父母会因不可预测且可能危及生命的并发症而遭受严重的痛苦。在 HSCT 后的前 100 天内,父母为孩子提供重症监护会加剧痛苦。如果父母通过创伤后成长 (PTG) 从他们的经历中获益,则可以加强对痛苦的管理和对照料责任的适应,但对父母在 HSCT 后的经历如何促进 PTG 知之甚少。本研究旨在探讨父母如何在儿童 HSCT 后 100 天体验照料和 PTG。方法:31 名家长在儿童接受 HSCT 后约 100 天完成了半结构化访谈。结果:数据中出现了四个主要主题来描述 HSCT 后的父母经历:(1)心理社会和医疗保健背景因素;(2) 对 HSCT 的认知、情感和社会支持反应;(3) 基于问题、基于情绪和认知的应对策略;(4) PTG。讨论:结果增加了对父母的经历和照顾责任如何促成 PTG 的理解。这些发现可能会指导未来的研究,以了解这些经历如何影响 PTG。护士是父母经历中不可或缺的一部分。未来的工作应该集中在护理干预上,以加强对孩子 HSCT 后父母经历的积极重新解释。

更新日期:2021-03-23
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