Informal family caregivers provide critical support for patients receiving chimeric antigen receptor (CAR) T-cell therapy. However, caregivers' experiences are largely unstudied. This study examined quality of life (QOL; physical functioning, pain, fatigue, anxiety, and depression), caregiving burden, and treatment-related distress in caregivers in the first 6 months after CAR T-cell therapy, when caregivers were expected to be most involved in providing care. Relationships between patients' clinical course and caregiver outcomes were also explored.

中文翻译：

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接受嵌合抗原受体 T 细胞治疗的患者护理人员的生活质量

非正式家庭护理人员为接受嵌合抗原受体 (CAR) T 细胞疗法的患者提供重要支持。然而，照顾者的经历在很大程度上是未经研究的。本研究检查了 CAR T 细胞治疗后头 6 个月护理人员的生活质量（QOL；身体机能、疼痛、疲劳、焦虑和抑郁）、护理负担和与治疗相关的痛苦，当时护理人员预计会大多数参与提供护理。还探讨了患者临床病程与护理人员结果之间的关系。