Background:

Several government schemes exist for the welfare of families having children with intellectual and developmental disorders (IDDs) in India. However, these schemes are often not utilized. An understanding of the barriers to access these social welfare benefits, especially in rural areas of India, can aid in planning social action toward the implementation of these schemes.

Methods:

A situation analysis of the resources and potential barriers to access social welfare benefits for families of children with IDD was conducted in a rural community. Stakeholder interviews were conducted with families of children with IDD (n = 20), government officials responsible for implementing education at the state level (n = 5), local officials responsible for facilitating social welfare benefits (n = 5), and nongovernmental organization (NGO) working in the area of children with IDD (n = 3). Qualitative thematic analysis was used to understand the barriers to access social welfare benefits for the families of children with IDD.

Results:

Barriers encountered by families of children with IDD, local officials, and NGOs included lack of awareness about the available welfare schemes, unavailability of social welfare facilities in the local areas, lack of social auditing in the provision of social welfare schemes to the needy, and stringent process of application and regulation for financial aid under the National Trust schemes.

Conclusion:

There are multiple barriers to access social welfare benefits for families having children with IDD in rural Karnataka. There is a strong need to empower families, sensitize local officials, and advocate for social policies to effectively implement National Trust schemes in rural areas of Karnataka.

中文翻译：

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卡纳塔克邦农村智力和发育障碍儿童家庭获得社会福利的障碍：情况分析

背景：

在印度，有一些政府计划为有智力和发育障碍 (IDD) 孩子的家庭提供福利。然而，这些方案通常不被使用。了解获得这些社会福利的障碍，特别是在印度农村地区，有助于规划实施这些计划的社会行动。

方法：

在农村社区对患有 IDD 的儿童家庭获得社会福利的资源和潜在障碍进行了情况分析。利益相关者访谈与 IDD 儿童的家庭（n = 20）、负责在州一级实施教育的政府官员（n = 5）、负责促进社会福利福利的地方官员（n = 5）和非政府组织（ n = NGO）在 IDD 儿童领域工作（n = 3）。定性主题分析用于了解 IDD 儿童家庭获得社会福利的障碍。

结果：

IDD儿童家庭、地方官员和非政府组织遇到的障碍包括对可用的福利计划缺乏认识，当地没有社会福利设施，在向有需要的人提供社会福利计划时缺乏社会审计，以及国家信托计划下的财政援助申请和监管的严格程序。

结论：

在卡纳塔克邦农村，有 IDD 孩子的家庭在获得社会福利方面存在多重障碍。迫切需要赋予家庭权力，提高地方官员的敏感性，并倡导社会政策，以在卡纳塔克邦农村地区有效实施国民信托计划。