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Do caregivers who connect online have better outcomes? A systematic review of online peer-support interventions for caregivers of people with stroke, dementia, traumatic brain injury, Parkinson’s disease and multiple sclerosis
Brain Impairment ( IF 0.8 ) Pub Date : 2021-03-15 , DOI: 10.1017/brimp.2021.5
Sarah J. Wallace , Janaki Kothari , Anushki Jayasekera , Jessica Tointon , Toluwalase Baiyewun , Kirstine Shrubsole

Background and Objectives:This systematic review aimed to identify and appraise the evidence for online peer-support interventions for caregivers of stroke survivors (with and without aphasia), and people with dementia, traumatic brain injury (TBI), Parkinson’s disease and multiple sclerosis.Research Design and Methods:Systematic review conducted in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Five databases were systematically searched up until September 2020: EMBASE, PubMed, CINAHL, Scopus and Web of Science. Two reviewers independently screened titles, abstracts and full-text articles. The methodological quality of included studies was assessed using Physiotherapy Evidence Database (PEDro) and Mixed-Methods Appraisal Tool (MMAT) scales. Interventions were described using the Template for Intervention Description and Replication (TIDieR) checklist.Results:A total of 3026 records were identified from database searches. Following screening, 18 studies reporting 17 interventions were included in this review. Most studies (n = 13) reported interventions for caregivers of people with dementia. All studies incorporated an element of peer support as part of the intervention, however, most interventions (n = 15) comprised both psychosocial and educational elements. Statistically significant changes were reported for 11 interventions in one or more of the following domains: caregiver knowledge, mental health, stress, depression, distress, burden, self-efficacy, mastery, helplessness and perceived support. Qualitative outcomes included perceived reductions in stress and increased emotional and informational support.Discussion and Implications:Positive changes in caregiver outcomes were identified in response to multi-component online interventions (i.e., peer support in addition to education). Peer support was often poorly described, limiting the conclusions that could be drawn about the intervention components which result in better outcomes. Online interventions may provide an accessible and effective means of supporting caregivers.

中文翻译:

在线联系的护理人员是否有更好的结果?对中风、痴呆、创伤性脑损伤、帕金森病和多发性硬化症患者的照顾者的在线同伴支持干预的系统评价

背景和目的:本系统评价旨在确定和评估针对中风幸存者(伴有和不伴有失语症)以及痴呆症、外伤性脑损伤(TBI)、帕金森病和多发性硬化症患者的护理人员进行在线同伴支持干预的证据。研究设计和方法:根据系统评价和元分析 (PRISMA) 指南的首选报告项目进行系统评价。截至 2020 年 9 月,系统搜索了五个数据库:EMBASE、PubMed、CINAHL、Scopus 和 Web of Science。两名审稿人独立筛选标题、摘要和全文文章。使用物理治疗证据数据库(PEDro)和混合方法评估工具(MMAT)量表评估纳入研究的方法学质量。使用干预描述和复制模板 (TIDiR) 清单对干预进行了描述。结果:从数据库搜索中确定了总共 3026 条记录。筛选后,本综述纳入了 18 项研究报告了 17 项干预措施。大多数研究(n= 13) 报告了对痴呆症患者护理人员的干预措施。所有研究都将同伴支持作为干预的一部分,然而,大多数干预(n= 15) 包括社会心理和教育元素。据报道,11 项干预措施在以下一个或多个领域发生了显着变化:照顾者知识、心理健康、压力、抑郁、痛苦、负担、自我效能、掌握、无助和感知支持。定性结果包括感知到的压力减轻以及情感和信息支持的增加。讨论和启示:响应多组成部分在线干预(即,除了教育之外的同伴支持),确定了照顾者结果的积极变化。对同伴支持的描述通常很差,这限制了可以得出的关于导致更好结果的干预成分的结论。在线干预可以提供一种支持护理人员的可访问且有效的方法。
更新日期:2021-03-15
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