当前位置: X-MOL 学术Health Psychology Open › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
The experience of living with a chronic disease in pediatrics from the mothers’ narratives: The Clinical Interview on Parental Sense of Grip on the Disease
Health Psychology Open Pub Date : 2020-12-08 , DOI: 10.1177/2055102920971496
Livia Savarese 1 , Maria Francesca Freda 1 , Raffaele De Luca Picione 2 , Pasquale Dolce 3 , Raffaella De Falco 4 , Maria Alessio 5 , Mauro Cancian 6 , Adriana Franzese 5 , Maria Domenica Guarino 7 , Roberto Perricone 7 , Angelica Petraroli 8 , Riccardo Senter 1 , Claudia Traverso 5 , Andrea Zanichelli 9 , Eugenio Zito 10 , Maria Bova 5
Affiliation  

The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.



中文翻译:

从母亲的叙述中获得儿童患慢性病的经验:父母对疾病的控制感的临床访谈

已对68名患有遗传性血管性水肿(C1-Inh HAE),1型糖尿病(T1D),青少年类风湿关节炎(JRA)的儿童的母亲进行了关于慢性病握感的临床访谈。目的是检测育有慢性病的儿童的经历的一般特征,以及与不同状况相关的这种经历的特殊性。确定了四种握感感:渐进性,控制性,反应性,动态性。握感访谈是了解日常生活中疾病特征的有效临床工具,可帮助临床医生鼓励家庭适应疾病。

更新日期:2020-12-08
down
wechat
bug