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The perceived challenges of perinatal HIV in adolescents: a qualitative study
Vulnerable Children and Youth Studies Pub Date : 2021-02-24 , DOI: 10.1080/17450128.2021.1891358
Nicolette Comley-White 1 , Joanne Potterton 1 , Veronica Ntsiea 1
Affiliation  

ABSTRACT

As access to antiretroviral therapy has improved, so the population of perinatally HIV-infected adolescents (PHIVA) has grown. Data is emerging showing that this distinctive population faces increased risk of physical and psychosocial challenges, but there is limited research on what their experiences and perceptions are. This study aimed to explore the perceived challenges that PHIVA have.

Adolescents with perinatal HIV participated in semi-structured individual interviews. Clinical data was collected from their files. Substantive statements from the transcribed interviews were aligned with deductive codes, and then further explored through inductive analysis.

Data saturation was reached at 19 interviews. The mean age of the participants was 13.1 (SD ±2.2) years and the majority were female (63.2%). All of the participants were virally suppressed and the mean CD4 percentage was 40.5 (SD ± 6.7).

The most common codes were poor endurance (n = 10; 52.6%), pain (n = 10; 52.6%) and fatigue (n = 7; 36.8%), with only one participant not experiencing any challenges. Other codes were decreased community participation, poor muscle strength and/or motor skills; emotional difficulties; cognitive issues and other health issues. Together these codes formed the categories of physical challenges, psychosocial challenges, and other health issues, leading to the theme ‘living life as an adolescent with perinatally acquired HIV’.

Despite the full sample of PHIVA being virally suppressed, there were still noteworthy challenges that they experienced, with poor endurance, pain and fatigue being the most common. This potentially impacts on their community participation and their quality of life. Since not all PHIVA are as well managed as this group, one would expect even greater challenges in other PHIVA. This study highlights the importance of healthcare providers performing a comprehensive assessment of a PHIVA’s health, thus tailoring a model of care specific to their needs.



中文翻译:

青少年围产期 HIV 的认知挑战:一项定性研究

摘要

随着抗逆转录病毒治疗的普及,围产期感染艾滋病毒的青少年 (PHIVA) 的人数也在增加。数据显示,这一独特人群面临越来越大的身体和心理挑战风险,但关于他们的经历和看法的研究有限。本研究旨在探讨 PHIVA 面临的挑战。

患有围产期 HIV 的青少年参加了半结构化的个人访谈。临床数据是从他们的文件中收集的。转录采访的实质性陈述与演绎代码保持一致,然后通过归纳分析进一步探索。

19 次访谈达到数据饱和。参与者的平均年龄为 13.1 (SD ±2.2) 岁,大多数为女性 (63.2%)。所有参与者都被病毒抑制,平均 CD4 百分比为 40.5 (SD ± 6.7)。

最常见的代码是耐力差(n = 10;52.6%)、疼痛(n = 10;52.6%)和疲劳(n = 7;36.8%),只有一名参与者没有遇到任何挑战。其他代码是社区参与减少、肌肉力量和/或运动技能差;情绪困难;认知问题和其他健康问题。这些代码共同构成了身体挑战、社会心理挑战和其他健康问题的类别,从而形成了“作为围产期感染艾滋病毒的青少年过上生活”的主题。

尽管 PHIVA 的完整样本被病毒抑制,但他们仍然遇到了值得注意的挑战,耐力差、疼痛和疲劳是最常见的。这可能会影响他们的社区参与和他们的生活质量。由于并非所有 PHIVA 都像这一组一样得到良好的管理,人们预计其他 PHIVA 会面临更大的挑战。这项研究强调了医疗保健提供者对 PHIVA 的健康状况进行全面评估的重要性,从而根据他们的需求量身定制护理模式。

更新日期:2021-02-24
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