ABSTRACT

Rehabilitation offered to children living with HIV (CLHIV) experiencing disabilities can address participation restrictions and improve their quality of life and day-to-day community and school engagement. This study aimed to explore the perceptions and insights of healthcare professionals and other key stakeholders, such as community care workers, educators and social workers on the care offered to CLHIV experiencing disabilities in a semi-rural context in South Africa in order to inform and improve the rehabilitation framework. Focus group discussions and semi-structured interviews were used to gather information on the experiences of 15 purposively selected participants involved in the rehabilitative care of CLHIV. Three major themes emerged from the data: perceptions of HIV-related disability, current barriers to care and the proposed shift in care. Participants understood the biopsychosocial viewpoint of disability experienced by CLHIV. Barriers to care of the children included stigma and denial of HIV infection by carers, as well as poor multi-disciplinary team functioning. Participants reported that the ongoing education of healthcare workers, educators and carers as well as a task-shifting approach to care, training lay community members to conduct basic disability screening and referral could improve rehabilitative care for CLHIV.

摘要

为患有残疾的艾滋病毒（CLHIV）儿童提供的康复服务可以解决参与限制，并改善他们的生活质量以及日常社区和学校的参与。这项研究旨在探讨医疗保健专业人员和其他主要利益相关者（例如社区护理工作者，教育工作者和社会工作者）对于在南非半农村背景下为经历了残疾的CLHIV提供护理的观念和见解，以便为他们提供信息并改善他们的生活。康复框架。焦点小组讨论和半结构式访谈被用来收集有关15名故意选择参加CLHIV康复护理的参与者的经验的信息。数据显示出三个主要主题：对与艾滋病相关的残疾的认知，当前的护理障碍和拟议的护理转移。参加者了解了CLHIV所经历的残疾的生物心理社会学观点。照顾儿童的障碍包括污名化和否定护理人员感染艾滋病毒，以及多学科团队的不良运作。参与者报告说，医护人员，教育者和护理人员的持续教育以及照护的任务转移方法，培训外行社区成员进行基本的残疾筛查和转诊可以改善CLHIV的康复护理。