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Strategies for developing and implementing a rheumatoid arthritis healthcare quality framework: a thematic analysis of perspectives from arthritis stakeholders
BMJ Open ( IF 2.9 ) Pub Date : 2021-03-01 , DOI: 10.1136/bmjopen-2020-043759
Claire Barber , Diane Lacaille , Marc Hall , Victoria Bohm , Linda C Li , Cheryl Barnabe , James Rankin , Glen Hazlewood , Deborah A Marshall , Paul Macmullan , Dianne Mosher , Joanne Homik , Kelly English , Karen Tsui , Karen L Then

Objectives To obtain stakeholder perspectives to inform the development and implementation of a rheumatoid arthritis (RA) healthcare quality measurement framework. Design Qualitative study using thematic analysis of focus groups and interviews. Setting Arthritis stakeholders from across Canada including healthcare providers, persons living with RA, clinic managers and policy leaders were recruited for the focus groups and interviews. Participants Fifty-four stakeholders from nine provinces. Interventions Qualitative researchers led each focus group/interview using a semistructured guide; the digitally recorded data were transcribed verbatim. Two teams of two coders independently analysed the transcripts using thematic analysis. Results Perspectives on the use of different types of measurement frameworks in healthcare were obtained. In particular, stakeholders advocated for the use of existing healthcare frameworks over frameworks developed in the business world and adapted for healthcare. Persons living with RA were less familiar with specific measurement frameworks, however, they had used existing online public forums for rating their experience and quality of healthcare provided. They viewed a standardised framework as potentially useful for assisting with monitoring the care provided to them individually. Nine guiding principles for framework development and 13 measurement themes were identified. Perceived barriers identified included access to data and concerns about how measures in the framework were developed and used. Effective approaches to framework implementation included having sound knowledge translation strategies and involving stakeholders throughout the measurement development and reporting process. Clinical models of care and health policies conducive to outcome measurement were highlighted as drivers of successful measurement initiatives. Conclusion These important perspectives will be used to inform a healthcare quality measurement framework for RA.

中文翻译:

开发和实施类风湿性关节炎医疗质量框架的策略:对关节炎利益相关者观点的主题分析

目的获得利益相关者的观点,以为类风湿关节炎(RA)医疗质量测量框架的开发和实施提供信息。使用焦点小组和访谈的主题分析设计定性研究。招募了来自加拿大各地的关节炎利益相关者,包括医疗保健提供者,RA患者,诊所经理和政策负责人,以进行焦点小组和访谈。参与者来自9个省的54个利益相关者。干预定性研究人员使用半结构化指南引导每个焦点小组/访谈。数字记录的数据被逐字记录。由两位编码员组成的两个小组使用主题分析对成绩单进行了独立分析。结果获得了在医疗保健中使用不同类型的测量框架的观点。特别是,利益相关者主张将现有的医疗保健框架用于在商业世界中开发并适用于医疗保健的框架。RA的患者对特定的测量框架不太熟悉,但是,他们使用现有的在线公共论坛来评估他们的经验和所提供的医疗保健质量。他们认为标准化框架可能有助于协助监测他们个人提供的护理。确定了九项框架发展指导原则和13个衡量主题。确定的感知障碍包括获取数据和对框架中的措施如何开发和使用的担忧。有效的框架实施方法包括制定合理的知识翻译策略,并在整个度量开发和报告过程中让利益相关者参与。强调了有利于结果测量的护理和健康政策的临床模型是成功进行测量计划的驱动力。结论这些重要观点将用于为RA提供医疗质量测量框架。
更新日期:2021-03-05
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