Childbirth is one of the invaluable human experiences and is associated with parental happiness. However, when a child is born with congenital heart disease, it creates emotional and mental distress. As a result, it changes the parents’ response to their child birth. Exploring parenthood experiences add to the body of knowledge and reveal new perspectives. In order to make healthcare professionals able to support these children and their families, they should first understand the meaning of this phenomenon. This study aimed to explore the meaning of parenting a child with Congenital Heart Disease in Iran. A qualitative study was adopted with a conventional content analysis approach and constant comparative analysis. Participants in this study were 17 parents, including parents of children with congenital heart disease who were selected by purposeful sampling method. Semi-structured interviews were used for data collection and continued to data saturation. Data were analyzed via MAXQDA 10 software. Four categories and twenty three subcategories emerged as meaning of parenting a child with Congenital Heart Disease. Categories include “Emotional breakdown”, “The catastrophic burden of care”, “Spiritual beliefs of parents” and “The hard road” Fully understanding the life experience of these families will allow the implementation of targeted health interventions. Hence, by understanding the meaning of parenting a child with Congenital Heart Disease, healthcare professionals can asses parents emotional statues, information and spiritual needs, financial condition, insurance and marital status using CHD standards so that support is individualized, sensitive and time appropriate.

中文翻译：

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作为先天性心脏病孩子的父母，这意味着什么？定性研究

分娩是人类宝贵的经验之一，与父母的幸福感相关。但是，当孩子出生时患有先天性心脏病时，会造成情绪和精神困扰。结果，它改变了父母对孩子出生的反应。探索父母的经历增加了知识面，并揭示了新的观点。为了使医疗保健专业人员能够支持这些孩子及其家庭，他们应该首先了解这种现象的含义。这项研究旨在探讨在伊朗育儿一名患有先天性心脏病的孩子的意义。定性研究采用了常规的含量分析方法和持续的比较分析。这项研究的参与者是17位父母，包括通过有目的抽样方法选择的先天性心脏病儿童的父母。使用半结构化访谈进行数据收集，并继续使数据饱和。通过MAXQDA 10软件分析数据。育有先天性心脏病的孩子的含义出现了四个类别和二十三个子类别。类别包括“情绪崩溃”，“灾难性的医疗负担”，“父母的精神信仰”和“艰辛的道路”。充分了解这些家庭的生活经验将有助于实施有针对性的健康干预措施。因此，通过了解让孩子患有先天性心脏病的含义，医疗保健专业人员可以评估父母的情感状况，信息和精神需求，财务状况，