Purpose: The Participatory Autism Research Collective (PARC) was initially set up with the purpose of bringing autistic people, including scholars and activists (but not exclusively), together with early career researchers and practitioners who work with autistic people, with the aim being to build a community where those who wished to see more significant involvement of autistic people in autism research could share knowledge and expertise. Design/methodology/approach: This article explores the development of the PARC network, reflecting upon its activities and ethos within current Higher Education (HE) practices and structures. Findings: In supporting autistic individuals in their attempts to establish themselves within academic systems that may not always be considerate or accommodating, the existence of PARC creates a structure with which autistic people can influence social change. PARC serves as a network of support, strengthening the presence of autistic scholars in academia. It also provides a structure through which autistic people are able to demonstrate helpful practices with which to engage more broadly. Originality/Value: The PARC network is the first autistic-led venture of its kind in the UK to have a sustained impact. PARC is growing to become an important element in the field of autism studies both by supporting the emerging autistic academics and by promoting ethical and participatory research methods and practices.

中文翻译：

---

对参与性自闭症研究集体 (PARC) 发展的批判性反思

目的：参与性自闭症研究集体 (PARC) 最初成立的目的是将自闭症人士，包括学者和活动家（但不仅限于）与早期职业研究人员和与自闭症人士一起工作的从业者聚集在一起，目的是建立一个社区，让那些希望看到自闭症患者更多地参与自闭症研究的人可以分享知识和专业知识。设计/方法/途径：本文探讨了 PARC 网络的发展，反思了其在当前高等教育 (HE) 实践和结构中的活动和精神。调查结果：在支持自闭症患者尝试在可能并不总是体贴或包容的学术系统中建立自己的过程中，PARC 的存在创造了一种结构，自闭症患者可以通过这种结构影响社会变革。PARC 作为一个支持网络，加强了自闭症学者在学术界的存在。它还提供了一个结构，通过该结构，自闭症患者能够展示有助于更广泛参与的有用实践。原创性/价值：PARC 网络是英国首个以自闭症为主导、具有持续影响力的企业。PARC 通过支持新兴的自闭症学者以及促进道德和参与性研究方法和实践，正逐渐成为自闭症研究领域的重要组成部分。它还提供了一个结构，通过该结构，自闭症患者能够展示有助于更广泛参与的有用实践。原创性/价值：PARC 网络是英国首个以自闭症为主导、具有持续影响力的企业。PARC 通过支持新兴的自闭症学者以及促进道德和参与性研究方法和实践，正逐渐成为自闭症研究领域的重要组成部分。它还提供了一个结构，通过该结构，自闭症患者能够展示有助于更广泛参与的有用实践。原创性/价值：PARC 网络是英国首个以自闭症为主导、具有持续影响力的企业。PARC 通过支持新兴的自闭症学者以及促进道德和参与性研究方法和实践，正逐渐成为自闭症研究领域的重要组成部分。