ABSTRACT We conducted a qualitative study aiming to understand the process of diagnosis disclosure in a group of HIV-infected adolescents/young adults, aware of their serological ‘status’, and among their caretakers, as well as its possible consequences. Data collection were carried out through semi-structured interviews with 40 adolescents/young adults, and with the caretakers of the patients under 18 years old, in a referral hospital in Rio de Janeiro, Brazil, in 2016. Results signalized that the HIV diagnosis disclosure was made usually by a close relative. Most of the adolescents/young adults claimed that they feel ‘normal’, despite the difficulties in sharing the diagnosis outside the family, and report feelings of rejection and social prejudice. The caretakers’ points of view coincided with the adolescents’ observations. We suggest that the diagnosis disclosure should not be postponed, since patients who underwent an adequate process of disclosure may more likely complied to treatment and experienced a better social insertion.

中文翻译：

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艾滋病毒诊断信息披露：寻找其含义以及一群垂直感染的青少年/年轻人对它的看法-定性分析

摘要我们进行了定性研究，旨在了解一组感染了HIV的青少年/年轻人的诊断披露过程，了解他们的血清学“状况”以及他们的看护者及其潜在后果。2016年，在巴西里约热内卢的一家转诊医院中，通过半结构化访谈与40名青少年/年轻人以及18岁以下患者的看护人进行了数据收集。结果表明，HIV诊断披露通常是由近亲所造。尽管难以在家庭外分享诊断，但大多数青少年/年轻人声称他们感觉“正常”，并报告了被排斥和社会偏见的感觉。看护者的观点与青少年的观察相吻合。