当前位置: X-MOL 学术European Journal of Health Law › 论文详情
Our official English website, www.x-mol.net, welcomes your feedback! (Note: you will need to create a separate account there.)
Making Access to a Population of Bodies in the Name of Autonomy
European Journal of Health Law Pub Date : 2018-11-15 , DOI: 10.1163/15718093-12550402
Ida Helene Asmussen 1 , Katharina Eva Ó Cathaoir 1
Affiliation  

Developments within biotechnology are of a pace and complexity that challenge the predictability at the foundation of legislation, i.e. the possibility for politicians to foresee pitfalls and hazards, and design legislation accordingly. The lack of predictability is not only a challenge for the legislature, but also for the citizen, who is to consent to the new biotech services offered by the health authorities. How can one give informed consent to a measure, the consequences of which is hard to predict? Does the uncertainty and lack of predictability mean that paternalism slipped back in as a 'self-selected' responsiveness to the rhetoric of the health regime? Recently, Denmark has taken another step in the direction of voiding autonomy of actual value by rendering genetic analysis contingent on agreeing that the resulting data may be stored in the recently established National Genome Centre, and reused for research unless the patient opts out.

中文翻译:

以自治的名义进入机构群体

生物技术的发展步伐和复杂性挑战了立法基础上的可预测性,即政客有可能预见陷阱和危害,并据此设计立法。缺乏可预见性不仅对立法机关构成挑战,对公民也将构成挑战,因为公民必须同意卫生当局提供的新生物技术服务。人们如何才能在知情的情况下同意一项措施,其后果难以预测?不确定性和缺乏可预见性是否意味着家长式服务作为对卫生制度言论的“自选”反应而退缩了?最近,
更新日期:2018-11-15
down
wechat
bug