Background

As the primary caregivers for children with congenital heart disease (CHD), parents' perceptions are important for emerging adults to achieve independence. This integrative review of qualitative studies aimed to describe parents' perceptions of emerging adults with CHD.

Method

Seven electronic databases were searched. Data extraction and quality assessment were performed. A meta-synthesis was conducted to inductively develop essential themes from five included studies.

Results

Three essential themes encompassing the parents' perspective of emerging adults with CHD were: (1) concerns about emerging adults' ability to be independent; (2) concerns about emerging adults' future; and (3) impact of disease on family. The themes depicted parents' concerns and worries about their children's ability to successfully achieve independence, especially in disease self-management and life goals.

Discussion

This review highlights parents' concerns about their emerging adult children's independence. Understanding these concerns allows for developing interventions to facilitate emerging adults' independence and ease parents' worries.

中文翻译：

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父母对患有先天性心脏病的新兴成人的看法：定性研究的综合回顾

背景

作为先天性心脏病 (CHD) 患儿的主要照料者，父母的看法对于新生的成年人实现独立非常重要。这项对定性研究的综合审查旨在描述父母对患有先天性心脏病的新成年患者的看法。

方法

搜索了七个电子数据库。进行了数据提取和质量评估。进行了综合综合，以从五项纳入的研究中归纳出基本主题。

结果

父母对患有先天性心脏病的成人的看法包括三个基本主题：(1) 对成人独立能力的担忧；(2) 对新兴成年人未来的担忧；(3) 疾病对家庭的影响。这些主题描述了父母对孩子能否成功实现独立的关注和担忧，尤其是在疾病自我管理和生活目标方面。

讨论

这篇评论强调了父母对他们即将成年的孩子的独立性的担忧。了解这些担忧有助于制定干预措施，以促进新兴成年人的独立并减轻父母的担忧。