Background: Raising a child with autism spectrum disorder is associated with high levels of stress. Primary caregivers are a group at risk of mental illness and reduced quality of life. Although interventions for the child with autism spectrum disorder exist, there are few or no interventions focusing on the physical, emotional and psychological needs of the primary caregivers. Objectives: The aim of this scoping review paper was to identify and describe quality of life interventions offered to primary caregivers of children with autism spectrum disorder. The content, structure, and mechanism of delivery of these interventions, including their contribution to improving the quality of life of these caregivers, are discussed. Method: A scoping review protocol and methodology was developed and implemented according to a five-step process; namely, identification of the research question including the PICo, identification of suitable studies using selected search strings, selection of studies using PRISMA guidelines, charting of the results, and collation and summarising of the information. Reviewers where active at various stages to maintain the rigour of the study. Twenty one studies were reviewed and eligible for analysis. Results: The content and trends in structure and mechanism of delivery are described. Three themes emanated from the interventions’ content. The studies were analysed according to quality of life domains addressed in the interventions. Conclusion: The scoping review highlights current practices informing interventions for primary caregivers of children with autism spectrum disorder and may serve as a guide by practitioners and researchers for developing future evidence-based interventions for this population.

中文翻译：

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自闭症谱系障碍儿童的主要护理人员的生活质量干预措施：范围回顾

背景：抚养自闭症谱系障碍的孩子与高压力有关。初级保健人员是有患精神病和生活质量下降的人群。尽管存在针对自闭症谱系障碍儿童的干预措施，但很少或根本没有针对主要看护者的身体，情感和心理需求的干预措施。目的：这份范围界定性综述文件的目的是确定和描述向自闭症谱系障碍儿童的主要看护者提供的生活质量干预措施。讨论了这些干预措施的内容，结构和机制，包括它们对改善这些护理人员的生活质量的贡献。方法：根据五步流程开发并实施了范围界定审查协议和方法。即 确定包括PICo在内的研究问题；使用选定的搜索字符串确定合适的研究；使用PRISMA指南选择研究；绘制结果图表；以及整理和汇总信息。审稿人在各个阶段都很活跃，以保持研究的严格性。对21项研究进行了审查并符合分析条件。结果：描述了递送结构和机制的内容和趋势。干预内容产生了三个主题。根据干预措施中涉及的生活质量对研究进行分析。结论：