This article focuses on the social and societal factors that influence family quality of life (FQOL). In this qualitative study from the Netherlands, a multiple case study design was used, in which members of families having a child or children with intellectual and developmental disabilities talked about their experiences during interviews. The data were analysed through a rigorous inductive thematic analysis. Our findings relate to the families’ experiences with their social environment and especially with the support they received. We argue that processes of acceptance and understanding play a role in FQOL. Also, we illustrate how the family members experience their interaction with the community, and how moral norms and values could influence the lives of the families. The families reflected on notions of normality and being different, and sometimes struggled with the implicit norms and values of society, which can impede acceptance and understanding by others. In turn, these norms and values influence the level of support from other people and the possibilities for social interaction with the community.

中文翻译：

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“特殊”家庭及其“正常”日常生活：家庭生活质量和社会环境

本文重点介绍影响家庭生活质量（FQOL）的社会和社会因素。在这项来自荷兰的定性研究中，使用了一个多案例研究设计，其中有一个或多个智障和发育残疾儿童的家庭成员在访谈中谈论了他们的经历。通过严格的归纳主题分析对数据进行了分析。我们的发现与家庭在社会环境中的经历有关，尤其是与他们获得的支持有关。我们认为接受和理解的过程在FQOL中起作用。此外，我们还将说明家庭成员如何体验与社区的互动，以及道德规范和价值观如何影响家庭生活。家庭反映了常态和与众不同的观念，有时会与隐含的社会规范和价值观作斗争，这会阻碍他人的接受和理解。反过来，这些规范和价值观会影响其他人的支持水平以及与社区进行社交互动的可能性。