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Editor Introduction 16(1)
Journal of Social Work in End-of-Life & Palliative Care Pub Date : 2020-01-02 , DOI: 10.1080/15524256.2020.1735104
Ellen L. Csikai 1
Affiliation  

Welcome to the New Year and new volume! The continued growth and interest in social work in end-of-life and palliative care has brought with it an ever-increasing diversity of topics and issues raised within the field. While there are many emerging topics including use of trauma-informed assessment and intervention and approaches and timely ones such as with veterans’ of all eras, more well-known topics such as advance care planning and bereavement remain of concern also. In this issue, a variety of these topics are presented. The next issue will be a special thematic issue about “Issues of Grief and Bereavement in End-of-Life Care.” So stay tuned! In the first of the research articles in this issue, Klingensmith and colleagues focus on End-Stage Renal Disease (ESRD); a life-limiting medical condition for which palliative care is accessed infrequently. Also, advance care planning is often lacking even though the condition has a high mortality rate. The authors describe a training program for social workers with the goal of increasing advance care planning and hospice referrals for individuals with ESRD. This was one part of training that also included other disciplines in the field. They identified obstacles to increasing ACP as staff turnover and lack of commitment to ACP of the dialysis corporations within which the staff are employed. The next article describes how photography in hospice is used by social workers and how the potential effects were perceived. Shuber and Kok conducted qualitative interviews with social workers who took photographs as part of legacy interventions with hospice patients. The typical type of photography used in hospice is that of photographs from patients’/families’ past to promote reminiscence. Social workers taking photographs during hospice care to document the care and dying process with and for patients’ families as described has slightly different in goals and can help with anticipatory grief and promote comfort and termination. Next, Beaune and colleagues, describe the under-representation of fathers whose children have a life-limiting medical condition and are receiving palliative care in research. Fathers’ needs and views of the palliative care interventions have been poorly understood. Using mixed-methods, they examined factors that affected paternal participation in research. Data from focus groups of fathers revealed facilitators and barriers to their participation. These fathers reported that they were likely to participate in the study if they perceived that the study was important; were able to see a gain for themselves or someone else; and if they had an existing relationship with the health provider. Barriers to participation were the researchers’ reliance on health providers to identify fathers for participation and fathers’ poor rating of their own coping. It is recommended that research studies should be ‘father-focused’ and be explicit in describing the value of the potential results of the research. An ongoing problem of accurate reporting of contact information for families after death needs continued vigilance. Finally, in the last article, Gibson and colleagues help to provide an understanding of how those who are terminally ill may be supported by posting personal narratives online. In their study, examined were video blogs (vlogs) posted that contained

中文翻译:

编辑介绍16(1)

欢迎来到新年和新卷!对报废和姑息治疗社会工作的持续增长和兴趣,使该领域提出的主题和问题日益多样化。尽管出现了许多新兴话题,包括使用创伤知情的评估和干预方法以及及时的话题,例如各个时代的退伍军人,但更著名的话题,如事前护理计划和丧亲之痛,仍然值得关注。在本期中,将介绍各种主题。下期将是关于“临终关怀中的悲伤和丧亲问题”的专题主题。敬请期待!在本期的第一篇研究文章中,Klingensmith及其同事专注于终末期肾脏疾病(ESRD);一种不常接受姑息治疗的限制生命的医疗条件。而且,即使该病死亡率很高,也常常缺乏预先护理计划。作者介绍了一项针对社会工作者的培训计划,目的是增加针对ESRD个体的预先护理计划和临终关怀转诊。这是培训的一部分,还包括该领域的其他学科。他们确定了增加ACP的障碍是人员流动和缺乏雇用员工的透析公司对ACP的承诺。下一篇文章介绍社工如何使用临终关怀摄影以及如何感知潜在的影响。Shuber和Kok对社会工作者进行了定性访谈,他们对临终关怀患者的传统干预措施是拍照。在临终关怀中使用的典型摄影类型是来自患者/家人过去的照片,以促进回忆。如上所述,社工在临终关怀期间拍照以记录与患者家人以及患者家人的照料和死亡过程,其目标略有不同,可以帮助缓解预期的悲伤并促进舒适感和终止生活。接下来,博恩及其同事描述了父亲的代表性不足,其孩子的生命状况受到限制,并且在研究中接受姑息治疗。父亲对姑息治疗干预措施的需求和看法知之甚少。他们使用混合方法检查了影响父亲参与研究的因素。父亲焦点小组的数据显示出促进者和他们参与的障碍。这些父亲报告说,如果他们认为研究很重要,他们很可能会参加研究。能够看到自己或他人的收获;以及他们是否与健康提供者建立了关系。参与的障碍是研究人员依靠卫生保健提供者来确定父亲是否参与,以及父亲对自己的应对方式的评价不高。建议研究应“以父亲为中心”,并且在描述研究潜在结果的价值时应明确。死亡后为家庭准确报告联系信息的持续性问题需要继续保持警惕。最后,在上一篇文章中,Gibson及其同事通过在线发布个人叙事来帮助人们了解如何为绝症患者提供支持。
更新日期:2020-01-02
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