ABSTRACT This article addresses the dilemmas concerning legislation, individual autonomy and the reality of everyday life for people coping with dementia. We describe and analyse decision-making in relation to older people with dementia in Sweden, within the area of social work regulated by the Social Services Act and the Parental Act. Swedish legislation is based on the individual’s autonomy and capacity to consent to services without anyone having legal authority to decide on behalf of the individual. Based on data from interviews with family caregivers living at home, decision-making through family caregivers is discussed and formal guardianship is also considered. Swedish legislation leaves individuals with dementia and family caregivers in a vacuum between self-determination and full autonomy with the ideal of citizenship emphasised and recognised in the Social Services Act on the one hand, and on the other, a strong need for support in everyday life and with decision-making.

中文翻译：

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老年痴呆症患者的家庭照顾者和决策

摘要 本文解决了痴呆症患者在立法、个人自主权和日常生活现实方面的困境。我们在《社会服务法》和《父母法》规定的社会工作领域内描述和分析了与瑞典老年痴呆症患者有关的决策。瑞典立法基于个人的自主权和同意服务的能力，而任何人都没有法律权力代表个人做出决定。根据与住在家里的家庭照顾者的访谈数据，讨论了通过家庭照顾者的决策，并考虑了正式监护权。