ABSTRACT Qualitative research is about people’s lives; their stories, their thoughts, their feelings, and their experiences. Researchers continue to reflect on the best way to present other people’s stories in a way that stays true to their accounts and delivers the message in a manner which resonates. This article presents one such way, discovered through serendipity, which allowed the researcher to share findings from young people’s stories eloquently and passionately to audiences of healthcare professionals from different disciplines. The silence and raw emotion witnessed after the poetry delivery was akin to that often seen during childbirth when those around are stunned into thoughtful awe. The poetry, which was crafted entirely from young participants’ interview transcripts had two benefits; (1) sharing young people’s stories using their own words and (2) using a presentation format that demanded attention; so that people took notice, listened and reflected on the words and experiences being expressed.

中文翻译：

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你给了我一个我不能说的名字，但我必须每天解释它是什么：诗歌的力量分享患有罕见疾病的年轻人的故事

摘要 定性研究是关于人们的生活；他们的故事、他们的想法、他们的感受和他们的经历。研究人员继续思考以真实的方式呈现其他人的故事并以引起共鸣的方式传达信息的最佳方式。本文介绍了一种通过偶然发现的方式，使研究人员能够雄辩而热情地向来自不同学科的医疗保健专业人士的听众分享年轻人故事的发现。诗歌交付后的沉默和原始情感类似于分娩时经常看到的周围的人都陷入了深思熟虑的敬畏之中。完全根据年轻参与者的采访记录制作的诗歌有两个好处：(1) 用他们自己的语言分享年轻人的故事； (2) 使用需要关注的演示形式；以便人们注意、倾听并反思所表达的文字和经历。