ABSTRACT

This paper explores the impact of family-informed care on Medicaid enrollees with disabilities’ unmet needs for medical services and long-term services and supports (LTSS) and family members’ appraisal of the services received by those enrollees within a Medicaid managed care program in one Midwestern state. Families play an important role in the lives of people with disabilities. However, little is understood about the relationship between unmet needs of people with disabilities and the degree to which their family informs the care they receive. Regression analyses were performed on 700 surveys that were partially completed by a Medicaid enrollee with a disability and partially by a family member. After controlling for enrollee and family demographics/factors and family involvement in day-to-day activities, family members who reported higher levels of the family-informed care had higher appraisals of the services received by enrollees and those enrollees reported fewer unmet medical and LTSS needs. Findings highlight the importance of including family members in healthcare decision-making within social policies and programs, such as Medicaid managed care.

Additional research is needed to promote best practices in family-informed care when desired by adults with disabilities.

摘要

本文探讨了家庭知情护理对未满足医疗服务和长期服务与需求需求的残障医疗补助参与者的影响（LTSS）以及家庭成员对医疗补助管理计划中这些参与者获得的服务的评估。一个中西部国家。家庭在残疾人的生活中起着重要作用。然而，人们对残疾人的未满足需求与他们的家庭告知他们所接受的护理的程度之间的关系知之甚少。对700项调查进行了回归分析，其中一部分由残障的医疗补助参与者完成，一部分由家庭成员完成。在控制了参与者和家庭人口统计/因素以及家庭参与日常活动之后，报告家庭护理水平较高的家庭成员对注册者所获得服务的评价较高，而这些注册者表示未满足的医疗和LTSS需求较少。调查结果强调了将家庭成员纳入医疗政策制定等社会政策和计划（如Medicaid管理式医疗）中的重要性。

当残疾成人需要时，还需要进行其他研究以推广家庭知情护理的最佳实践。