Background/Objective

After an acquired brain injury (ABI), the person remains with several impairments and disabilities that cause a decrease in his/her quality of life (QoL), which could change over time. The objective of the study was to analyse the evolution patterns of QoL in a sample of persons with ABI for one-year as well as the differences in proxy- and self-report versions of a QoL instrument. Method: The sample comprised 402 persons with ABI with ages ranging between 18 and 91 years, whom 36.20% had had the accident recently (i.e., three years or less). Patients, professionals and relatives responded at three evaluation points to the CAVIDACE scale, an ABI-specific QoL tool. Results: ANOVAs showed an improvement in QoL in the two follow-ups; the improvement was especially significant in the period between baseline and six months. The respondent factor did not interact with the evaluation time, but significant differences were found between respondents, with scores of patients higher than that for proxies. Finally, the QoL’s evolution interacts with the time elapsed since injury, showing significant improvements in the most recent group (i.e., three years or less). Conclusions: QoL must be considered from the earliest moments after ABI to obtain more significant improvements.

中文翻译：

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获得性脑损伤的生活质量纵向研究：自我报告和代理报告评估

背景/目标

在获得性脑损伤（ABI）后，该人仍然患有多种障碍和残疾，导致他/她的生活质量（QoL）下降，并可能随时间而变化。这项研究的目的是分析ABI患者一年中QoL的演变模式，以及QoL仪器的代理和自我报告版本的差异。方法：样本包括402名ABI患者，年龄在18至91岁之间，其中36.20％的人最近（即三年或更短）出了车祸。患者，专业人员和亲属在三个评估点对CAVIDACE量表（ABI特定的QoL工具）做出了回应。结果：方差分析显示，在两次随访中，QoL均有改善。在基线到六个月之间的时间段内，改善尤为明显。受访者因素与评估时间没有交互作用，但受访者之间存在显着差异，患者得分高于代理人。最后，QoL的演变与受伤后的时间有关，在最近的一组中（即三年或更短）显示出明显的改善。结论：必须从ABI后最早的那一刻起考虑QoL，以取得更大的改善。