Parents use the internet to connect with their peers and access information about a multitude of health topics, including newborn screening (NBS). As the NBS system evolves, education about NBS must be evaluated and updated to remain accessible and beneficial to parents. In this article, we aim to describe parents' current NBS educational needs and highlight areas to improve newborn screening education by detailing an analysis of NBS posts on an online parenting discussion platform. We analyzed a total of 317 discussion posts on BabyCenter®, finding that parents had questions about and desired support around many aspects of NBS including processes, results, and follow‐up. As a result of this analysis, three recommendations to improve NBS education were developed. Through collaboration and by leveraging technology, we can provide parents with accessible, timely, and desired NBS informational and social support.

中文翻译：

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数字对等信息搜索和共享：新生儿筛查中的教育和合作机会

父母使用互联网与同龄人联系并访问有关多种健康主题的信息，包括新生儿筛查 (NBS)。随着 NBS 系统的发展，必须评估和更新有关 NBS 的教育，以保持对父母的访问和有益。在本文中，我们旨在通过对在线育儿讨论平台上的 NBS 帖子进行详细分析，来描述父母当前的 NBS 教育需求，并突出改善新生儿筛查教育的领域。我们分析了 BabyCenter® 上的 317 个讨论帖，发现父母对 NBS 的许多方面（包括流程、结果和后续行动）存在疑问并希望得到支持。作为这一分析的结果，提出了三项改进 NBS 教育的建议。通过协作和利用技术，