Purpose

Patient-centric exchanges, a major type of Health Information Exchange (HIE), empower patients to aggregate and manage their health information. This exchange model helps patients access, modify and share their medical information with multiple healthcare organizations. Although existing studies examine patient engagement, more research is required to investigate patients' attitudes and willingness to play an active role in patient-centered information exchange. The study's main objective is to develop a model based on the belief-attitude-intention paradigm to empirically examine the effects of patients' attitudes toward engagement in care on their willingness to participate in patient-centric HIE.

Design/methodology/approach

The authors conducted an online survey study to identify the antecedents and consequences of patients' attitudes toward engagement in care. To empirically test the research model, the authors collected data from a national sample (n = 357) of individuals in the United States. The data were analyzed using structural equation modeling (SEM).

Findings

The proposed model categorizes the antecedents to patients' attitudes toward engagement in patient-related and healthcare system factors. The results show that patient-related factors (perceived health literacy and perceived coping ability) and health system factors (perceived experience with the healthcare organization and perceived patient-provider interaction) significantly shape patient attitude toward care management engagement. The results indicate that patients' attitudes toward engaging in their healthcare significantly contribute to their willingness to participate in medical information sharing through patient-centric HIE initiatives. Moreover, the authors’ findings also demonstrate that the link between patient engagement and willingness to participate in HIE is stronger for individuals who perceive lower levels of privacy and security concerns.

Originality/value

The authors validate the proposed model explaining patients' perceptions about their characteristics and the healthcare system significantly influence their attitude toward engaging in their care. This study also suggests that patients' favorable attitude toward engagement can bring patient-centric HIE efforts onto a path to success. The authors’ research attempts to shed light on the importance of patients' roles in adopting patient-centric HIE initiatives. Theoretical and practical contributions of this study are noticeable since they could result in a deeper understanding of the concept of patient engagement and how it may affect healthcare services in an evolving digital world. The authors’ findings can help healthcare organizations provide public citizen-centric services by introducing user-oriented approaches in healthcare delivery systems.

中文翻译：

---

患者参与在以患者为中心的健康信息交换（HIE）计划中的作用：美国的一项实证研究

目的

以患者为中心的交流是健康信息交换（HIE）的主要类型，使患者能够汇总和管理其健康信息。这种交换模型可帮助患者访问，修改并与多个医疗机构共享其医疗信息。尽管现有的研究检查了患者的参与程度，但仍需要进行更多的研究来调查患者在以患者为中心的信息交流中扮演积极角色的态度和意愿。这项研究的主要目的是建立一个基于信念-态度-意图范式的模型，以实证研究患者对护理的态度对他们参与以患者为中心的HIE意愿的影响。

设计/方法/方法

作者进行了一项在线调查研究，以查明患者对待护理态度的前因和后果。为了实证检验研究模型，作者从美国的国家样本（n  = 357）中收集了数据。使用结构方程模型（SEM）分析数据。

发现

提出的模型将患者对参与患者相关和医疗保健系统因素的态度进行分类。结果表明，患者相关因素（感知的健康素养和感知的应对能力）和卫生系统因素（感知的医疗保健组织经验以及感知的患者-提供者互动）显着影响了患者对护理管理投入的态度。结果表明，患者对参与医疗保健的态度大大有助于他们通过以患者为中心的HIE计划参与医疗信息共享的意愿。此外，

创意/价值

作者验证了所提出的模型，该模型解释了患者对其特征的看法，而医疗保健系统极大地影响了他们进行护理的态度。这项研究还表明，患者对参与的良好态度可以将以患者为中心的HIE努力带入成功之路。作者的研究试图阐明患者在采用以患者为中心的HIE计划中的角色的重要性。这项研究的理论和实践贡献引人注目，因为它们可以使人们对患者参与的概念以及它如何影响不断发展的数字世界中的医疗服务产生更深刻的理解。