Abstract

The history of research in American Indian/Alaska Native (AI/AN) communities has been marked by unethical practices, resulting in mistrust and reluctance to participate in research. Harms are not limited to individual persons—tribal communities experience harmful misrepresentation and generalizations disrespectful of AI/AN groups’ heritage, cultures, and beliefs. The Belmont Report’s research ethics principles are applied primarily to protect individual research participants. The principles of sovereignty and solidarity are argued to be important concepts in extending Belmont’s research protections to tribal communities. Sovereignty, an expression of respect for autonomy at a group level, is the basis for tribal self-determination. The principle of solidarity provides an ethical underpinning for tribes’ obligations to protect community interests and culture. Extension of Belmont through these principles should serve to minimize harms to AI/AN groups in research.

摘要

美洲印第安人/阿拉斯加原住民 (AI/AN) 社区的研究历史以不道德的做法为标志，导致不信任和不愿参与研究。危害不仅限于个人——部落社区会遭受不尊重 AI/AN 群体的传统、文化和信仰的有害歪曲和概括。贝尔蒙特报告的研究伦理原则主要用于保护个体研究参与者。主权和团结原则被认为是将贝尔蒙特的研究保护扩展到部落社区的重要概念。主权是对群体自治的尊重，是部落自决的基础。团结原则为部落保护社区利益和文化的义务提供了道德基础。通过这些原则扩展贝尔蒙特应该有助于最大限度地减少对研究中的 AI/AN 群体的伤害。