Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besides, coping strategies are also put forward as a significant element in understanding the functions of a parent as a caregiver. Hence, this study aims to explore the in-depth experiences of caregivers and investigate the challenges as well as the coping strategies adopted by them, particularly as Muslims. Eight (8) main themes emerged from the findings: (i) chronology;(ii) caregiver roles;(iii) routine changes; (iv) making decisions;(v) financial;(vi) letting go;(vii) external support;and (viii) internal support.This study is unique because the patient was an only child, and he managed to score excellent grades in all subjects in the Malaysian Primary School Achievement Test (UPSR) despite not attending school for almost one year due to cancer treatments.

中文翻译：

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我们的孩子快死了：探索马来西亚父母作为癌症儿童的照顾者的经历、挑战和应对机制

父母作为儿童癌症患者的照顾者面临着各种挑战。本文重点介绍了马来西亚环境中一对父母作为一名癌症儿童的主要家庭照顾者所经历的特征、照顾任务、资源和其他角色需求/压力。此外，还提出了应对策略，作为理解父母作为照顾者的职能的重要因素。因此，本研究旨在探索看护者的深入体验，并调查他们所面临的挑战以及他们所采取的应对策略，特别是作为穆斯林。调查结果中出现了八 (8) 个主要主题：(i) 年表；(ii) 照顾者角色；(iii) 日常变化；(iv) 做出决定；(v) 财务；(vi) 放手；(vii) 外部支持；和 (viii) 内部支持。