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Stitching Stories of Broken Hearts: Living Response-ably with the Technologies of Death and Dying at the Beginning of Life
Australian Feminist Studies ( IF 1.170 ) Pub Date : 2020-04-02 , DOI: 10.1080/08164649.2020.1791688
Stine Willum Adrian 1
Affiliation  

ABSTRACT Born with half a heart, my firstborn child died when he was three weeks old. This auto-ethnographic article takes as its point of departure one of the questions that this tragic event made me ask: How do technologies reconfigure responsibility for death, as technologies are involved in ending or saving the lives of children like my son? With this question, I introduce a new research agenda within reproductive studies regarding how technologies remake death and dying at the beginning of life. Drawing on the notion of phenomena from agential realism, I examine how responsibility emerges in different ways as I tell my son’s story together with media and medical stories told about foetuses or infants who died after having been diagnosed with hypoplastic left heart syndrome. I show that we need to challenge the idea of the autonomous subject that shapes the Cartesian understanding of ethics and responsibility. By stitching stories of broken hearts together, my storytelling is not only a call for a feminist ethics of living response-ably with technologies of death and dying at the beginning of life, it is a way to find response-able practices of living with the deaths of foetuses and infants.

中文翻译:

破碎的心的缝合故事:用生命之初的死亡和死亡技术巧妙地生活

摘要 我的第一个孩子出生时只有半颗心,但在他三周大时就夭折了。这篇关于个人民族志的文章将这一悲剧事件让我提出的一个问题作为出发点:技术如何重新配置​​死亡的责任,因为技术涉及结束或拯救像我儿子这样的儿童的生命?带着这个问题,我在生殖研究中引入了一个新的研究议程,关于技术如何在生命之初重塑死亡和死亡。借鉴代理现实主义的现象概念,当我讲述我儿子的故事以及媒体和医学故事时,我研究了责任如何以不同的方式出现,这些故事讲述了被诊断出患有左心发育不良综合征后死亡的胎儿或婴儿。我表明我们需要挑战形成笛卡尔对道德和责任的理解的自主主体的想法。通过将破碎的心的故事拼接在一起,我的讲故事不仅是呼吁女权主义伦理,以应对死亡的技术和生命之初的死亡,这是一种找到应对现实生活的方式。胎儿和婴儿的死亡。
更新日期:2020-04-02
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