ABSTRACT

Introduction

This study explores the intersubjective potentials of nonspeaking young individuals with the more severe forms of cerebral palsy through their musicality and appropriation of music. Here, these forms are called cerebral palsies and multiple disabilities (CPMD).

Method

A pluralistic research approach, specifically a combined qualitative approach was applied due to the sensitive and unexplored population. The philosophical framework was IPA, suitable for studying unique persons or phenomena in given contexts. A three-interview series was applied. First, the communicability, musicality, and the musicking of six individuals with (CPMD) were studied through two semi-structured life world interviews with their parents: five Israeli women and one man, religious and non-religious Jews in their 40s. Musical home videos were viewed during every second interview. Grounded theory (GT) coding took place with the transcribed interviews and the researcher’s journal. GT was not aimed to generate theory, but gain an additional perspective and thicker data. Subsequently, the GT findings were discussed with the parents through a third interview, and the results were finalized with IPA analysis.

Findings

Three superordinate themes emerged in relation to the musicality, appropriation of music in everyday life, and the parents’ low awareness of their children’s potentials.

Discussion

Parental-professional collaboration and a consumer-led approach are recommended in order to improve the parents’ low awareness of their children’s potentials, and to encourage more aware use of music’s affordances. The study’s limitations are discussed and future directions suggested.

中文翻译：

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沉默的声音：与患有脑瘫和多发性残疾的非说话者的交流，音乐性和音乐使用

摘要

介绍

这项研究通过音乐性和音乐性探索了不说话的年轻人与较严重形式的脑瘫的主体间性。在这里，这些形式称为脑瘫和多发性残疾（CPMD）。

方法

由于敏感和未开发的人群，因此采用了多元化的研究方法，特别是结合了定性方法。哲学框架是IPA，适用于在给定背景下研究独特的人或现象。应用了三个访谈系列。首先，通过与父母进行的两次半结构化生活世界访谈，研究了六名患有（CPMD）的人的交流能力，音乐性和音乐性：五名以色列妇女和一名男子，四十多岁的宗教和非宗教犹太人。在第二次面试中都会观看家庭音乐视频。扎实的理论（GT）编码与转录的访谈和研究人员的日记一起进行。GT并非旨在产生理论，而是获得了更多的视角和更丰富的数据。后来，

发现

与音乐性，日常生活中的音乐使用以及父母对子女潜力的低意识有关，出现了三个上级主题。

讨论区

建议家长-专业合作和以消费者为主导的方法，以提高父母对孩子潜力的低意识，并鼓励人们更多地使用音乐。讨论了这项研究的局限性，并提出了未来的方向。