Abstract

This article seeks to examine the ways in which ‘work’ is a crucial domain within a holistic approach to understanding disability and family life. The research is based on the experiences of 49 people who either self-identified as disabled or were family members of a person with an impairment. The analysis focuses on the meaningfulness of work and argues that the meaning of work needs to be expanded in order to be more inclusive of disabled people. Issues of accessing and maintaining appropriate work and harmful work are also discussed. The research highlights the importance of work, both paid and unpaid, for disabled people and their families. However, the wrong kinds of work can have harmful consequences for disabled people and this needs to be acknowledged in policy focusing on access to work.

• Points of interest

• The study explores the experiences of paid work and non-involvement in paid work of disabled people and their families.

• The participants discussed the value of different kinds of work for disabled people

• The research highlights the importance of unpaid work for disabled people, including voluntary work and activism.

• Some participants faced constraints accessing and maintaining appropriate work and careers

• Some work and ways of working can be harmful to the health of disabled people

• Disabled people and their families make significant contributions to society

摘要

本文旨在探讨“工作”如何成为理解残疾和家庭生活的整体方法中的一个关键领域。该研究基于 49 名自称为残疾人或残疾人家庭成员的人的经历。该分析侧重于工作的意义，并认为需要扩大工作的意义，以便更多地包容残疾人。还讨论了访问和维护适当工作和有害工作的问题。该研究强调了有偿和无偿工作对残疾人及其家人的重要性。然而，错误的工作类型可能会对残疾人产生有害后果，这需要在关注工作机会的政策中得到承认。

• 兴趣点

• 该研究探讨了残疾人及其家人的有偿工作和不参与有偿工作的经历。

• 与会者讨论了不同类型工作对残疾人的价值

• 该研究强调了残疾人无偿工作的重要性，包括志愿工作和行动主义。

• 一些参与者在获得和维持适当的工作和职业方面面临限制

• 一些工作和工作方式可能对残疾人的健康有害

• 残疾人及其家人对社会做出重大贡献