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From “since” to “if”: using blogs to explore an insider-informed framing of autism
Disability & Society ( IF 2.478 ) Pub Date : 2020-10-18 , DOI: 10.1080/09687599.2020.1836479
Christie Welch 1 , Deb Cameron 1, 2 , Margaret Fitch 3 , Helene Polatajko 1, 2
Affiliation  

Abstract

This study was conducted within a series aimed at building understanding of autism using insider perspectives. We applied a descriptive qualitative approach, highlighting meanings that the informants attach to events in their lives. The data were generated by scraping blogs written by autistic authors. We conducted an inductive thematic analysis using an iterative process of coding, collating and reviewing themes. We present the themes using two structures taken from the dataset. The first structure “current trajectories” illustrates with how the bloggers perceive non-autistic people to frame autism, as well as their experiences of effects propagated by this frame. The second structure “preferred trajectories” is rooted in the bloggers’ framing of autism and follows their predicted effects that could come about through adoption of this frame. The bloggers’ framing of autism challenges the biomedical frame and they convincingly suggest that a public shift to their insider-informed frame would improve their lives.

  • Points of interest
  • For this study, we explored writings of autistic bloggers, to examine how their insider understanding of autism can improve non-autistic peoples’ understanding of autism.

  • Compared to portrayals in most academic literature, the bloggers in this study frame autism in a way that is more embodied and more positive, and autistic people as more caring, more insightful and more ready to inform and engage in research.

  • We present the bloggers’ perceptions of how dominant framing of autism has impacted their lives as well as their visions of a preferred future in which public perceptions of autism have been informed by autistic people.

  • This study supports the necessity and feasibility of autistic people informing, guiding and engaging in autism research.



中文翻译:

从“自从”到“如果”:使用博客探索自闭症的知情框架

摘要

这项研究是在一系列旨在利用内部观点建立对自闭症的理解的范围内进行的。我们采用了描述性的定性方法,突出了线人对其生活中事件的意义。这些数据是通过抓取自闭症作者撰写的博客生成的。我们使用编码、整理和审查主题的迭代过程进行了归纳主题分析。我们使用从数据集中提取的两种结构来呈现主题。第一个结构“当前轨迹”说明了博主如何看待非自闭症患者以框定自闭症,以及他们对该框传播效果的体验。第二种结构“首选轨迹”植根于博客作者对自闭症的框架,并遵循他们通过采用该框架可能产生的预期效果。

  • 兴趣点
  • 在这项研究中,我们探索了自闭症博主的作品,以检验他们对自闭症的内部理解如何能够提高非自闭症人群对自闭症的理解。

  • 与大多数学术文献中的描述相比,本研究中的博主以更具体和更积极的方式描述自闭症,自闭症患者更关心、更有洞察力,更愿意提供信息和参与研究。

  • 我们介绍了博客作者对自闭症的主导框架如何影响他们的生活的看法,以及他们对自闭症患者对公众对自闭症的看法的美好未来的愿景。

  • 本研究支持自闭症患者告知、指导和参与自闭症研究的必要性和可行性。

更新日期:2020-10-18
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