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Navigating the Ghanaian health system: stories from families of children with intellectual and developmental disabilities
International Journal of Developmental Disabilities ( IF 2.170 ) Pub Date : 2021-01-08
De-Lawrence Lamptey

This study explored the experiences of families in navigating the Ghanaian health system to address the general health needs of their children with intellectual and developmental disabilities (IDD). The sample involved 22 primary caregivers of children with IDD aged 3-18 years who participated in a semi-structured interview. The interviews were analyzed using the constant comparison analytical method. The findings highlighted key enablers and barriers related to three overarching themes: entry into the health system; consultation with health professionals; and service coordination. The findings showed that the families and their children gained entry into the health system in many health facilities. However, the families revealed that some facilities denied the children services, either because the children had difficulties following entry processing protocols or there were no health professionals willing to address the children’s needs. Although health professionals perform their duties professionally during consultation and care administration in many cases, the families reported on some challenges. Service coordination was seamless in some facilities; however, the families reported on other facilities they accessed where service coordination was not seamless. The study findings illustrate that the experiences of families and their children with IDD in the Ghanaian health system may be mixed.



中文翻译:

导航加纳的卫生系统:来自智力和发育残疾儿童家庭的故事

这项研究探索了家庭在导航加纳卫生系统以解决其智力和发育性残疾(IDD)儿童的一般健康需求方面的经验。该样本涉及22名3-18岁IDD儿童的主要看护人,他们参加了半结构化访谈。使用常数比较分析方法对访谈进行了分析。调查结果强调了与三个总体主题相关的关键推动因素和障碍:进入卫生系统;咨询卫生专业人员;和服务协调。调查结果表明,家庭及其子女在许多医疗机构都进入了医疗系统。但是,这些家庭透露,有些设施拒绝提供儿童服务,要么是因为孩子在遵循入境手续协议时遇到困难,要么是没有医疗专业人员愿意满足孩子的需求。尽管在许多情况下,卫生专业人员在咨询和护理管理过程中会专业地履行职责,但这些家庭还是报告了一些挑战。在某些设施中,服务协调是无缝的。但是,这些家庭报告了他们在服务协调不是无缝的情况下所使用的其他设施。研究结果表明,加纳卫生系统中IDD家庭及其子女的经历可能参差不齐。这些家庭报告了一些挑战。在某些设施中,服务协调是无缝的。但是,这些家庭报告了他们在服务协调不完善的地方所使用的其他设施。研究结果表明,加纳卫生系统中IDD家庭及其子女的经历可能参差不齐。这些家庭报告了一些挑战。在某些设施中,服务协调是无缝的。但是,这些家庭报告了他们在服务协调不是无缝的情况下所使用的其他设施。研究结果表明,加纳卫生系统中IDD家庭及其子女的经历可能参差不齐。

更新日期:2021-01-08
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