ABSTRACT

Objectives: This is the first study to estimate prevalence of self-reported personality change (PC) in people with multiple sclerosis (MS). Methods developed in traumatic brain injury studies explore physical, and psychosocial triggers for PC judgments.

Participants: 69 MS clinic attendees living with their partner.

Measures: Participants rated the degree of PC. 28 Current and pre-MS characteristics were rated. The Multiple Sclerosis Impact Scale, the MS Neuropsychological Questionnaire, the Beck Depression Inventory-FastScreen, and the Hospital Anxiety and Depression Scale quantified neuropsychological status. The Family Questionnaire, McMaster Assessment Device and the Social Provisions Scale sampled perceived social influences.

Results: 54% perceived substantial PC. Current characteristics predicted PC better than perceived behavior changes. PC was associated with specific characteristics denoting stress reactions, emotional distress, perceived cognitive impairment and poorer family functioning. PC was not significantly related to severity of physical symptoms or social support. This study also suggested that the specific characteristics questionnaire probed at least 2 components of reconstructed identity: PC/Reactivity and Disability.

Conclusions: This study raises methodological concerns about measures that simply sum ratings of characteristics related to self-identity. It also proposes possible ways of collaborating with individuals in their efforts to respond constructively to PC and other changes. .

摘要

目标：这是第一项估计多发性硬化症 (MS) 患者自我报告人格改变 (PC) 患病率的研究。在创伤性脑损伤研究中开发的方法探索 PC 判断的身体和社会心理触发因素。

参与者： 69 名与他们的伴侣住在一起的 MS 诊所参加者。

措施：参与者评定PC的程度。28 对电流和 MS 前特性进行了评级。多发性硬化症影响量表、MS 神经心理问卷、贝克抑郁量表-FastScreen 和医院焦虑和抑郁量表量化了神经心理状态。家庭问卷、麦克马斯特评估装置和社会供给量表对感知到的社会影响进行抽样。

结果：54% 的人感知到大量 PC。当前的特征比感知到的行为变化更能预测 PC。PC 与表示压力反应、情绪困扰、感知到的认知障碍和较差的家庭功能的特定特征相关。PC 与身体症状的严重程度或社会支持没有显着相关性。这项研究还表明，特定特征问卷调查了重建身份的至少 2 个组成部分：PC/反应性和残疾。

结论：这项研究对简单地总结与自我认同相关的特征评级的措施提出了方法论上的担忧。它还提出了与个人合作的可能方式，以便他们努力对 PC 和其他变化做出建设性的反应。.