Childhood cancer is a significant psychosocial stressor, and sibling adjustment ranges from resilience to clinically significant psychopathology. Siblings and parents often describe siblings' psychosocial functioning differently, which may reflect parental unawareness of siblings' adjustment to cancer and increase the risk for negative sibling outcomes. The present study characterizes siblings' and parents' perceptions of parents' awareness of siblings' psychosocial functioning and describes how family functioning influences parental awareness. Parents (N = 13) and siblings (N = 17, ages 8-17) from 13 families completed in-depth qualitative interviews regarding siblings' psychosocial adjustment to cancer. Interviews were coded for dimensions of family functioning based on the McMaster Model and analyzed using applied thematic analysis. Families were stratified based on higher or lower levels of parental awareness (i.e., knowledge of the presence, severity, or content of siblings' cancer-related feelings). Themes related to communication, affective involvement, roles, problem-solving, and affective responsiveness influenced parental awareness. Parental awareness was hindered by siblings' reluctance to communicate their feelings to parents due to the messages they received about cancer (e.g., be positive/helpful), siblings' hesitancy to rely on parents for emotional support, and parents not consistently asking about siblings' emotions. Additionally, parents' cancer-related stress and family disruptions reduced parental focus on siblings and decreased parents' tolerance of siblings' negative emotions. Higher parental awareness was facilitated by closer relationships prediagnosis, consistent communication, and affective problem-solving in response to cancer-related changes. Findings provide a more comprehensive understanding of the family processes underlying parental awareness and inform best practices for sibling assessment and support. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

中文翻译：

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父母对兄弟姐妹适应的认识：患有癌症的儿童的父母和兄弟姐妹的观点。

童年期癌症是重要的社会心理压力源，兄弟姐妹的适应范围从适应力到临床上重要的心理病理学。兄弟姐妹和父母经常以不同的方式描述兄弟姐妹的心理社会功能，这可能反映了父母对兄弟姐妹适应癌症的意识不足，并增加了负面兄弟姐妹结局的风险。本研究的特征是兄弟姐妹和父母对父母对兄弟姐妹心理社会功能意识的理解，并描述了家庭功能如何影响父母的意识。来自13个家庭的父母（N = 13）和兄弟姐妹（N = 17，8-17岁）完成了有关兄弟姐妹对癌症的心理社会适应性的深入定性访谈。访谈基于McMaster模型对家庭功能的维度进行编码，并使用应用主题分析进行分析。根据父母对父母的了解程度的高低来对家庭进行分层（即了解兄弟姐妹与癌症有关的感觉的存在，严重性或内容）。与沟通，情感参与，角色，解决问题和情感反应有关的主题影响了父母的意识。父母的意识受到阻碍，因为兄弟姐妹不愿与父母沟通自己的感受，这是因为他们收到了有关癌症的信息（例如，积极/有帮助），兄弟姐妹不愿依靠父母提供情感支持以及父母没有持续询问兄弟姐妹的情况。情绪。另外，父母的 与癌症相关的压力和家庭破裂减少了父母对兄弟姐妹的关注，降低了父母对兄弟姐妹负面情绪的容忍度。亲密的关系预诊，一致的沟通以及对癌症相关变化的情感解决问题，有助于提高父母的意识。研究结果提供了对父母意识基础的家庭过程的更全面理解，并为兄弟姐妹评估和支持提供了最佳实践。（PsycINFO数据库记录（c）2019 APA，保留所有权利）。研究结果提供了对父母意识基础的家庭过程的更全面理解，并为兄弟姐妹评估和支持提供了最佳实践。（PsycINFO数据库记录（c）2019 APA，保留所有权利）。研究结果提供了对父母意识基础的家庭过程的更全面理解，并为兄弟姐妹评估和支持提供了最佳实践。（PsycINFO数据库记录（c）2019 APA，保留所有权利）。