Direct-to-consumer (DTC) DNA (i.e., genetic) testing has become very popular, with close to 30 million Americans having used these services. The 100 most widely viewed DNA YouTube testing videos were analyzed to determine whether they are providing adequate information for consumers. The top 100 videos had more than 300 million cumulative views, showing the popularity and reach of the information source. While many videos addressed the specimen collection process, family roots and ancestry, and the prospect of uncovering unexpected information about family or health leading to possible distress, almost none of the videos addressed accuracy or confidentiality issues, which are major issues of DNA testing. It is recommended that further information on those issues be made readily available, and more vigilant oversight by regulatory agencies be implemented. Such oversight should include monitoring what information is and is not readily provided by each company, and the veracity of information being communicated to existing and prospective consumers. We also recommend that for medical issues, clinical genetic testing, along with genetic counseling by genetic counselors, be the method of choice.

中文翻译：

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YouTube 上的 DNA 检测信息：不充分的建议会误导和伤害公众

直接面向消费者 (DTC) DNA（即基因）测试变得非常流行，近 3000 万美国人使用过这些服务。分析了 100 个最广为观看的 DNA YouTube 测试视频，以确定它们是否为消费者提供了足够的信息。前100个视频累计观看次数超过3亿，可见信息源的热度和影响力。虽然许多视频涉及样本采集过程、家庭根源和血统，以及发现有关家庭或健康的意外信息导致可能的痛苦的前景，但几乎没有视频涉及准确性或保密性问题，这是 DNA 测试的主要问题。建议随时提供关于这些问题的进一步信息，并实施监管机构更加警惕的监督。此类监督应包括监控每家公司提供和不方便提供的信息，以及向现有和潜在消费者传达的信息的真实性。我们还建议，对于医学问题，临床基因检测以及遗传咨询师的遗传咨询是首选方法。