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An Exploratory Study of the Development and Pilot Testing of an Interactive Visual Tool of Neuropsychological Test Results in Memory Clinics
Journal of Alzheimer’s Disease ( IF 4 ) Pub Date : 2020-12-29 , DOI: 10.3233/jad-201128
Angélique A A Gruters 1 , Inez H G B Ramakers 1 , Annemarie P M Stiekema 1, 2 , Frans R J Verhey 1 , Roy P C Kessels 3, 4 , Marjolein E de Vugt 1
Affiliation  

Abstract

Background:

Neuropsychological feedback is an important part of the neuropsychological assessment process. However, patients have difficulties remembering this information.

Objective:

The aim of this study was to develop a web-based visual tool to improve the understanding of neuropsychological results, information retention, and psychologist-patient communication.

Methods:

The visual tool was developed and optimized using an iterative three-phase stepwise approach to determine its usability, technology acceptance, and feasibility in a memory clinic population. Feedback from different user perspectives (patients, family members, and psychologists) was obtained in each phase using a multimethod approach (e.g., a multidisciplinary brainstorm session, think-aloud sessions, focus groups). The prototype was subsequently tested in a pilot study.

Results:

The first phases offered insights that led to optimization of the prototype. On a scale ranging from 0 to 100, psychologists evaluated the usability as high [88.1±7.6,70–87]. During the pilot study, both patients and significant others gave positive feedback, but information retention in patients remained low. All participants thought the benefits of the visual tool included seeing cognitive strengths and weaknesses with a translation to daily life all at one glance and receiving feedback on paper to take home. Important barriers were mentioned by psychologists, such as a limited set of tests included and no integration with hospital systems.

Conclusion:

Overall, patients, family members, and psychologists reported that a visual display of the cognitive profile with insights into daily life had added value to clinical practice. Feedback from the pilot study was adopted in the tool for future implementation purposes.



中文翻译:

记忆诊所神经心理学测试结果交互式视觉工具的开发和试点测试的探索性研究

摘要

背景:

神经心理反馈是神经心理评估过程的重要组成部分。然而,患者很难记住这些信息。

客观的:

本研究的目的是开发一种基于网络的视觉工具,以提高对神经心理学结果、信息保留和心理学家与患者沟通的理解。

方法:

视觉工具是使用迭代三阶段逐步方法开发和优化的,以确定其在记忆临床人群中的可用性、技术接受度和可行性。在每个阶段使用多种方法(例如,多学科头脑风暴会议、大声思考会议、焦点小组)从不同用户角度(患者、家庭成员和心理学家)获得反馈。该原型随后在一项试点研究中进行了测试。

结果:

第一阶段提供了导致原型优化的见解。在 0 到 100 的范围内,心理学家将可用性评估为高 [88.1±7.6,70-87]。在试点研究期间,患者和其他重要的人都给出了积极的反馈,但患者的信息保留率仍然很低。所有参与者都认为视觉工具的好处包括一目了然地看到认知优势和劣势,并将其翻译成日常生活,并在纸上接收反馈并带回家。心理学家提到了一些重要的障碍,例如包含的测试集有限,并且没有与医院系统集成。

结论:

总体而言,患者、家庭成员和心理学家报告说,通过对日常生活的洞察力来直观显示认知概况为临床实践增加了价值。该工具采用了试点研究的反馈意见,以供将来实施。

更新日期:2020-12-29
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