Although patient involvement is on the political agenda, the influence on clinical practice is poorly described. The aim of this study was to explore and evaluate the participatory process of involving patients and relatives in development of a surgical breast cancer patient pathway. The overall design was insider action research and included two Danish surgical breast cancer clinics. In dialogue meetings patients, relatives, and healthcare professionals (HCPs) discussed suggestions for improving the pathway. Patients and relatives were satisfied with the pathway organisation in general. However, suggestions related to information, communication, and choice of treatment were presented. In response to this, a patient decision aid was developed, tested, and implemented, and HCPs increased focus on male relatives, and made minor changes to the pathway. Participants were satisfied with the participatory process, however, recommendations for future dialogue meetings included shortening the follow-up period, using a skilled facilitator, reminding HCPs being open-minded, and emphasizing for patients and relatives that participation may require a surplus of mental resources. Overall, recommendations on patient involvement obtained from this project could, due to their general relevance, be implemented in clinical settings other than breast cancer. Furthermore, action research proved a suitable design for research on patient involvement.

尽管患者的参与是政治议程，但对临床实践的影响却鲜有描述。这项研究的目的是探索和评估使患者和亲属参与外科手术乳腺癌患者通路发展的参与过程。总体设计是内部行动研究，包括两家丹麦外科乳腺癌诊所。在对话会议上，患者，亲戚和医疗保健专业人员（HCP）讨论了改善途径的建议。患者和亲属对途径的组织总体上满意。但是，提出了有关信息，沟通和治疗选择的建议。为此，开发，测试和实施了患者决策辅助工具，HCP越来越重视男性亲属，对路径进行了微小的更改。与会者对参与过程感到满意，但是，未来对话会议的建议包括缩短随访时间，使用熟练的协调员，提醒HCP持开放态度，并向患者和亲属强调参与可能需要大量的智力资源。 。总体而言，由于该项目具有普遍意义，因此可以从该项目获得的患者参与建议在除乳腺癌以外的其他临床环境中实施。此外，行动研究证明是适合患者参与研究的设计。向患者和亲戚强调参与可能需要大量的智力资源。总体而言，由于该项目具有普遍意义，因此可以从该项目获得的患者参与建议在除乳腺癌以外的其他临床环境中实施。此外，行动研究证明是适合患者参与研究的设计。向患者和亲戚强调参与可能需要大量的智力资源。总体而言，由于该项目具有普遍意义，因此可以从该项目获得的患者参与建议在除乳腺癌以外的其他临床环境中实施。此外，行动研究证明是适合患者参与研究的设计。